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My cancer journey

Started by Ed_K, July 11, 2016, 07:34:39 PM

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Chuck White

It's absolutely amazing, the things they can do nowadays!
~Chuck~  Cooks Cat Claw sharpener and single tooth setter.  2018 Chevy Silverado and 2021 Subaru Ascent.
With basic mechanical skills and the ability to read you can maintain a Woodmizer  LT40!

Okrafarmer

Ouch, I'm right there with the frightening halucinations. Last year I was really, really, cotton-picking sick, and I didn't know why. I couldn't even keep water down, and my mind began to shut down as I lay there wallowing in sweat. then I started halucinating. (I wasn't on any meds or drugs of any kind). I would see all kinds of neon-glowing geometric shapes moving around in front of me, and I felt compelled to manipulate them into some sort of order, but I could only assert minimal control over them. All this with extreme nausea, thirst, throat burning with pain, and head pounding. Eventually I got taken to the doctor, who found out it was a bad sinus infection. Who knew. Antibiotics cleared it up.
He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty. Psalm 91:1

Operating a 2020 Woodmizer LT35 hydraulic for Upcountry Sawmill, Dacusville, SC

Now selling Logrite tools!

Writing fiction and nonfiction! Check my website.

thecfarm

Meds can affect us all differently. Keep at it,there must be something for you out there.
I've seen my wife throw 3-4-5 hundred dollars worth of pills away. Paid for by insurance,but still a waste.   ::)  We told the Dr. just give her about 5 and see what happens.
Model 6020-20hp Manual Thomas bandsaw,TC40A 4wd 40 hp New Holland tractor, 450 Norse Winch, Heatmor 400 OWB,YCC 1978-79

timberlinetree

Glad to hear your making progress. Praying for you.
I've met Vets who have lived but still lost their lives... Thank a Vet

Family man and loving it :)

red

I came across a YouTube video this morning . . Chemo this morning , Garth tonight . Enjoying the Dance . In Nov 2014 Garth Brooks stopped a concert after seeing this womans sign in the crowd . In Jan 2015 Garth followed up by saying the woman was Cancer Clean. . Stay strong ED . . Your in our Thoughts and Prayers
Honor the Fallen Thank the Living

kensfarm

I would def. talk to the doctor about your pain meds.. they can try something at the lower  range like generic percocet.  Enough to help you w/ the pain and be functional.. not knock you out half the day.  Hope you feel better..  Ken

Ed_K

 Well I'm back awake, After almost 3 weeks we have found that this med that was supposed to deal with the painfull burning of the muscle tissue and numbness in my arms and legs, had a bad reaction to me which made me sleep all to time. It was all most as bad coming off them than the pain of not have taken them at all. At one point I got where I couldn't stand the smell of food that if I was straight would have loved to eat. then the anxiety got to be too much. On monday Rita took me to the er as I was having what I thought was that I couldn't breath. They did a bunch of test and found nothing so they sent me home. Yesterday we had a meeting with the Nurse Pract. and she said to try the anti nausea, when we got home we found the bottle also say it's for anxiety. What a difference by 3pm I was up, not feeling sick tired or like I couldn't breath. I guess the meds for anxiety are also called happy pills. Anyways I rather take them than something that makes me sleep 24-7.
Ed K

gww


Carson-saws

Ed...from my home to yours...prayers and best wishes to you and those around you.  Obviously you are a very strong person and those that support you love and care deeply for you.  Keep staying strong Sir and "keep that cup full"...
Let the Forest be salvation long before it needs to be

Ed_K

 I've started a second type of drug therapy other than having to have more I.V. injections it's working pretty good less pain and numbness. They are having a rough time getting the iv needles in, took two try's each day and I'm on a thur, fri, treatment. Both arms hurt a little from that but overall pain is down a lot.We talked about a port stile of injection for the iv's but I'm too active I think for this.
No one can tell us how long this treatment will go on for,but after this it'll go the the stem cell treatments.
Ed K

red

Thoughts and Prayers from miles away
Honor the Fallen Thank the Living

thecfarm

Model 6020-20hp Manual Thomas bandsaw,TC40A 4wd 40 hp New Holland tractor, 450 Norse Winch, Heatmor 400 OWB,YCC 1978-79

Ed_K

 On wed. we had a meeting with a doctor who's a specialist in Multiple Myeloma at Dartmouth Hitchcock in N.H. We went over my past history, what medicine's I have been on, which ones work and which ones didn't. Now that they have switched me to a new drug it seems to be working better, the first one I think was too strong and I couldn't keep my blood counts up enough to follow thru week to week. They also made me hurt a lot. So there are changes they can do to individualize for each person's system. The doctor will have us come back for another meeting in 6 to 8 weeks to explain what and how the stem cell transplant will be done and give us a tour of the facility. This procedure is where they use my own blood stem cells grow more and freeze them, then when I'm as low as can be in knocking down the bad blood cells and in remission they will use a very powerful chemo, before they go with the transplant and 2 weeks of isolation. After all this I will have to be tested periodically to keep the myeloma in check. Then there will be follow up treatments to keep it in remission. I finished cycle 1 day 4 of the new treatment and feel a little better so here's hoping this new treatment will work better than the first and I can finish cycle 1 have a week off and do cycle 2 and on.
Ed K

Roxie

Say when

Gary_C

Never take life seriously. Nobody gets out alive anyway.

red

Honor the Fallen Thank the Living

Jeff

Just call me the midget doctor.
Forestry Forum Founder and Chief Cook and Bottle Washer.

Commercial circle sawmill sawyer in a past life for 25yrs.
Ezekiel 22:30

Ed_K

 I started cycle 2, days 1 and 2 last week, it's supposed to be a milder drug than the first one. I get one type of drug on Thur. and Fri. and they have a pill that I take along with the treatment, the pill goes for 21 days then I get a week off and start over this week will be cycle 2, days 8 and 9. This cycle seems to make me a lot shakier and tired so I'm taking a anxiety pill to calm that down. I've lost a lot of feeling in my fingers,so it's hard to pick things up. At the end of the month I go back to Dartmouth Hitchcock to talk to the cancer specialist. They will look over the test's and decide how much more of this drug I need to take or stop. If they decide to stop they will start taking good blood cells out and grow them. Then they will do a powerfull kemo that kills all the rest of the bad cells and put the new-good cells back. After that I don't know what's next.
Ed K

drobertson

Keeping you in my thoughts and prayers ed, not much to say except hang in there!
only have a few chain saws I'm not suppose to use, but will at times, one dog Dolly, pretty good dog, just not sure what for yet,  working on getting the gardening back in order, and kinda thinking on maybe a small bbq bizz,  thinking about it,

timberlinetree

Your in our thought and prays too.Hope you Get well soon!
I've met Vets who have lived but still lost their lives... Thank a Vet

Family man and loving it :)

Ed_K

Yesterday I went to do week 3 of the new chemo and they informed us that the blood platelets are to low and said I'd have to wait till the platelets grow some more good ones. So now I have to wait till Dec 1st to get going again. This happened when I first started way back when they tried the heavier chemo back in Jul, at least I got thru 2 weeks before the the chemo got to be to much. The numbers for good platelets run from 150 to 460, the doctor ok's it as long as it's at least 50 this weeks blood test came back at 34. The chemo really can take a toll on the body. I need to rest more but have a hard time doing so, I rather be doing something to keep my mind off all that's happening to me.
Ed K

thecfarm

Thanks for the update. I was hoping for better news. I think of you as I go about my day. My Father had that dreaded C word too.  :( Not many familes can get by without it.
Model 6020-20hp Manual Thomas bandsaw,TC40A 4wd 40 hp New Holland tractor, 450 Norse Winch, Heatmor 400 OWB,YCC 1978-79

Bandmill Bandit

So Sorry. My post was meant for the standing in need of prayer thread.

You are on our families prayer list, Ed! 
Skilled Master Sawyer. "Skilled labour don't come cheap. Cheap labour dont come skilled!
2018 F150 FX4, Husqvarna 340, 2 Logright 36 inch cant hooks and a bunch of stuff I built myself

gww

Life will be hard for all some of the time.  My uncle just had a biopsy and will know more around wends.  He had been operated on and had chemo a few years ago and this is hard news.  Bandmill, my dad has early alzhiemers and is much younger then your mother.  You have a prayer from me. You still do also ed.

I never know what to say except to point out that muddling through is usually what is forced on people and knowing that even in the worst of times something will happen that will usually make you glad you at least got to see it or feel it or know it.  Those times might be spred out more then they should be for some and not given out to all equally but usually everybody that is breathing will still get a chance to experiance a blessing.  I am not trying to say this in a talk down manner from someone who is not in the know as I am not walking in your shoes but more as a core beliefe that I have and trying to get others to watch for such times.  I am not very tough and hope that I have the courage to remember this in my hour of need.  I am not telling you I will but do believe it in my soul now that some blessing will come that you will be glad you made it through the pain to see.

As always, I hope my post are never hurtfull in any way.
Wishing bandmill and Edd only the best.
gww

Ed_K

 I pray for each of us also, night prayers some times are hard to finish as the night time pills catch up with me. But I do believe they help all of us.
Ed K

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