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My cancer journey

Started by Ed_K, July 11, 2016, 07:34:39 PM

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Okrafarmer

Have they told you to stop eating sugary things? Just wondering.
He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty. Psalm 91:1

Operating a 2020 Woodmizer LT35 hydraulic for Upcountry Sawmill, Dacusville, SC

Now selling Logrite tools!

Writing fiction and nonfiction! Check my website.

Ed_K

 All most at the beginning they told me no sugary food.
Today i finally got back on track, I asked awhile ago if there was a way to get the #s up enough to be able to get back on track and they didn't have an answer. I spent the last two days napping and I think the sleeping and not trying to work some is what got the #s up enough.I'm now hoping that the real bad pain in my right shoulder and hip will go away.
I quit drinking 17 yrs ago and got hooked on candy bars, that is really bothering me now (miss my candy).
Ed K

Okrafarmer

Yeah, it's no fun giving up stuff you enjoy. Whether it be candy bars, or logging.  :-\
He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty. Psalm 91:1

Operating a 2020 Woodmizer LT35 hydraulic for Upcountry Sawmill, Dacusville, SC

Now selling Logrite tools!

Writing fiction and nonfiction! Check my website.

Ed_K

 Had my 3rd visit with the doctor / specialist today. He's happy with the results so far, said that this first round of chemo was a little harsh, but it had to go this way to keep my kidney's from failing. He was right about the harsh part, it was hard to take. I still have 1 more round to finish. But then I can go on some sort of pill that won't be as bad as the IV. I'll still have to do the IV for another drug (I call it cambium builder  :D) it give me a lot of energy. Things seem to be looking up, just wish I could go back logging.
Ed K

Okrafarmer

Keep your chin up, boss-man! Sounds like progress!
8)
He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty. Psalm 91:1

Operating a 2020 Woodmizer LT35 hydraulic for Upcountry Sawmill, Dacusville, SC

Now selling Logrite tools!

Writing fiction and nonfiction! Check my website.

thecfarm

All in time. I suppose you have watched all the youtube logging videos??
Model 6020-20hp Manual Thomas bandsaw,TC40A 4wd 40 hp New Holland tractor, 450 Norse Winch, Heatmor 400 OWB,YCC 1978-79

Ed_K

 I don't watch many u-tube videos, I can't sit still for long  ;D . Whats really funny is, the nurse that does the IV s and shots keep asking me if I back to my normal routine  :D and the doctor tells me NO chain saws  :( . Guess she thinks everyone works at a desk  :o .
Ed K

Jeff

Did the Dr. give you a specific medical reason why you can't use a chainsaw if you are honestly feeling like you can?
Just call me the midget doctor.
Forestry Forum Founder and Chief Cook and Bottle Washer.

Commercial circle sawmill sawyer in a past life for 25yrs.
Ezekiel 22:30

doctorb

Sorry, I've been following this from too far away....

Many patients with multiple myeloma, and other blood related cancers,  have a tendency to be "clotters".  Meaning...they can form blood clots for no discernible reason.  Does your medical regimen include a blood thinner?  I can assure you that, if you are anti-coagulated, the "no chainsaw rule" is standard and sound advice. 

My continued good wishes to you.
My father once said, "This is my son who wanted to grow up and become a doctor.  So far, he's only become a doctor."

Okrafarmer

Quote from: doctorb on August 26, 2016, 09:58:33 PM
....Many patients with multiple myeloma, and other blood related cancers,  have a tendency to be "clotters".  Meaning...they can form blood clots for no discernible reason.  Does your medical regimen include a blood thinner?  I can assure you that, if you are anti-coagulated, the "no chainsaw rule" is standard and sound advice....

I'm not a doctor, but YIKES!  :o --uh, what he ^ said.
He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty. Psalm 91:1

Operating a 2020 Woodmizer LT35 hydraulic for Upcountry Sawmill, Dacusville, SC

Now selling Logrite tools!

Writing fiction and nonfiction! Check my website.

drobertson

Just getting to this, and am so sorry Ed for all of your struggles,  we will be keeping you in our thoughts and prayers.
only have a few chain saws I'm not suppose to use, but will at times, one dog Dolly, pretty good dog, just not sure what for yet,  working on getting the gardening back in order, and kinda thinking on maybe a small bbq bizz,  thinking about it,

Ed_K

 Hi Jeff, and DoctorB. The medical reason for no saw is all the pain meds I've had to take. I'm more scared of pain meds than than the cancer, 21 yrs ago when I had a back op I got hooked on pain killers. It was awful getting off them.
The doctor and nurses keep telling me to be careful of get cut, but when they stick a needle in it doesn't bleed a bit, so I don't know if I'm anti-coagulated.
I don't remember if there's a blood thinner in with all the different drugs I'm taking, Rita takes care of which ones and when cause I can't keep them straight, to much sawdust in my brain  ;D .
Thanks everyone for the prayers, I know their helping. While waiting one day we talked to two people who have some real serious blood related cancer can't remember the names but they ended with syndrome, so I'm calling mine ( mild myeloma ).
Ed K

Ed_K

 I started session #3 yesterday, it been so long between 2 and 3 that I think all the chemo drugs were totally out my system and I started to feel better. Now #3 is kicking in and I'm starting to get tired real quick. It's depressing with the many ups and downs. I have to have blood test every time we go for a treatment,if the #s are down to low they say nope can't treat you today and home we go.
I don't know how Rita does it, all her friends at work are on happy pills, and she won't even talk to her doc about how she feels.
Ed K

gww

Ed
Not to down play your situation but it is a bunch of extra pressure on those around you.  It puts the truth to the old saying, "misery loves company"  I am sending out a prayer for those around you also. 

As far as ups and downs go, It is nice that every once in a while a few ups are thrown your way every so often.  The above statement is out of context to what you were writing about but it is a general term that usually has some truth to it.  I hope you get lots of ups.

I only ever type a reponce to your sutuation in an attempt to give some kind of comfort.  If comfort is not what my responces cause, then you have my heart felt apologies.  I am a crass type of guy and sometimes I get it wrong but never on purpose.

Wishing you and yours the best.
gww

Ed_K

 gww, your response is very well appreciative, I thank you for the prayers, Rita needs them more than me.
Ed K

timberlinetree

Sorry to hear the up and downs are real tuff on both of you, but glad to hear #2 is behind you and your on #3. Glad Rita isn't on the  happy pills. There is good stuff going on and sometimes it's REALLY tuff to find,but it's there. Hang in there and be strong! I know your as tough as nails( or oak)! We are praying for both of ya!
I've met Vets who have lived but still lost their lives... Thank a Vet

Family man and loving it :)

Ed_K

 Well #3 is going just the same as #2, half way and numbers are to low and had to skip the third belly shot. The chemo drugs make you hurt a lot but constipation pain is worse, I finally broke the problem, they changed the stool softner and I decided I liked prune juice  :D . But for 4 days it was REALLY bad.
Ed K

Roxie

Say when

Gary_C

Ed, sure glad to see you are progressing.

I too know how bad that combination of drugs, constipation and poor diet can be. Sometimes it's the worst part of any treatment.
Never take life seriously. Nobody gets out alive anyway.

thecfarm

Hang in there. I enjoyed that picture of the two hats.   ;D
Model 6020-20hp Manual Thomas bandsaw,TC40A 4wd 40 hp New Holland tractor, 450 Norse Winch, Heatmor 400 OWB,YCC 1978-79

WDH

Ed,

My thoughts are with you. 
Woodmizer LT40HDD35, John Deere 2155, Kubota M5-111, Kubota L2501, Nyle L53 Dehumidification Kiln, and a passion for all things with leafs, twigs, and bark.  hamsleyhardwood.com

samandothers

Prayers still said for you.  Hang in and pull move on!  Hugs to Rita.

Ed_K

 Thanks, to all. I don't like the pain meds but after missing the night time round and the awful pain all night I don't want to do that again. I can only explain how it feels as a burning sensation inside the muscle and cramps all bunched together. We have a meeting with the doctor tomorrow, I hope he explains how I'm doing with this procedure, I feel like they change the dosage or something. #3 session is a lot more of a problem, trying to stay energized. I need to keep moving but I'm so worn down I'd rather sleep.
Ed K

Ed_K

 Thursday I had the appointment with the doctor, he's happy with the results of the chemo so far but was concerned with the after effects of the iv medicine. So he's changing up the IV one and the belly shot one. The IV will now be a pill and the shot a different type. I get to have another week off from the meds, to clean out whats still in me. I complained about the burning and numbness and he prescribed a pill to take (3 a day) by pill 4 I was totally out of it. I'd wake up look around and pass right back out, at times I felt like I was having hallucinations, I'd think I was picking up papers in my lap and moving them around and there weren't any papers near me. I quit takin them pill right then, they scared me more than the pain I have. I also was told, I'd finish up the 6 series run I'm on now then I'll go to Mary Hitchcock up in Hanover N.H. were they will take the clean blood cells and grow more with them. Then they will do a high dose of chemo drugs and kill all the bad cell that are left in me, then put the good new cells back in. This procedure really scares me. I have hopes that after they do this I'll be able to get a shot once a month or so and take a pill once a day to manage the cancer and be able to work again  :) .
Ed K

samandothers

Good to hear the Doc is good with progress.  Sorry to hear the struggle with pain and results of pain pills.  I can not imagine the apprehension associate with all this.   Praying for you.

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