Please keep us in your thoughts and prayers

sbishop · September 29, 2010, 12:42:07 PM

Our 10 month old daughter Rayne could use all the prayers she can get. She was sent to a childrens hospital in Halifax, NS in August. She keep getting infections that she could not fight off herself. Tomorrow we will be receiving the official results from all her blood test. Blood was sent to Cincinnati, Toronto and Germany. The doctors are 99% sure it is Severe Congenital Neutropenia or Kostmann syndrome (1 in a million). She is unable to produce neutrophils in her white blood cells that fight off bacteria infections. If they are right, there is no cure but there is treatment. She is receiving treatment now, its a daily injection of G-CFS.

Please keep us in your thoughts and prayers. I'm hoping they are wrong and its something else. Once we receive word, i will update this post.

For this reason i haven't been on here that much and the camp has been pretty much on hold. Once we get throught this, hopefully our lives will get back to normal and we can enjoy the outdoors again.

Thanks
Sbishop

Warbird · September 29, 2010, 12:44:57 PM

We will be praying for Rayne, Sbishop. And for you and the rest of the family, as well. Keep us updated.

JohnG28 · September 29, 2010, 12:52:22 PM

Your daughter and family will be in our prayers. Hope the best for her.

Norm · September 29, 2010, 12:58:13 PM

You can count on us for the prayers and support.

fishpharmer · September 29, 2010, 01:23:35 PM

My prayers are with Rayne and your family.

Jeff · September 29, 2010, 02:26:10 PM

will certainly do

sawman · September 29, 2010, 05:24:29 PM

Prayers from southeast MO. as well.
May God bless you and your family.

SwampDonkey · September 29, 2010, 05:52:16 PM

Hoping everything gets better with your daughter. You'll have to show her how to fish those salmon at the camp one day.

breederman · September 29, 2010, 07:03:23 PM

Hoping and praying for your family

Nate Surveyor · September 29, 2010, 07:44:12 PM

Lord,
We know that your kindness is greater than ours.
Please forgive us all of our sins, and let the stripes of Jesus, be in place of this young lady, with immune system problems. Please raise her up, in good health.
In Jesus name, amen.

paul case · September 29, 2010, 11:30:28 PM

we will pray for you and your daughter. pc

barbender · September 29, 2010, 11:31:31 PM

I will be praying for your precious little girl

Meadows Miller · September 30, 2010, 07:19:06 AM

Gday

Thats not good to hear but at least there is some treatment available to young Rayne You and your Family will be in My thoughts and prayers Mate ;)

Best Regards Chris

PC-Urban-Sawyer · September 30, 2010, 01:41:10 PM

Young Miss Rayne and your whole family are in our prayers here in the Panhandle of Florida.

Herb

Coon · September 30, 2010, 08:34:32 PM

Thoughts and prayers from here in Saskatchewan.

Magicman · September 30, 2010, 08:50:11 PM

My prayers are with Rayne and your family during this difficult time.

Mooseherder · September 30, 2010, 08:52:53 PM

From downhere in West Palm also Steve.

WDH · September 30, 2010, 09:03:26 PM

From Georgia, too.

Ernie · September 30, 2010, 09:58:21 PM

The Good Lord has given the medical people a lot of skills Jan and I pray that they use them well for Rayne.

sandhills · September 30, 2010, 11:12:32 PM

Prayers from us in Nebraska for you all.

StephenRice · October 01, 2010, 02:52:14 AM

I am praying for her and for your family as well. May you feel the peace of the Lord and may He wrap His arms around your little girl and hold her tight.

DoubleD · October 01, 2010, 12:02:35 PM

My prayers for little Rayne and your Family as well

woodsteach · October 01, 2010, 01:26:54 PM

More prayers from Nebraska for your family.

Stephen Alford · October 01, 2010, 06:32:02 PM

Our thoughts and prayers as well.

sbishop · October 01, 2010, 07:01:39 PM

We are back from our 11hrs return trip with not much to report, not all the test results were in except for one.

She tested negative for Fanconi anemia (which is good) but the docs were pretty certain she didn't have that.

We have to wait a few more weeks for the Kostmann result.

THANK YOU SO MUCH for your thoughts and prayers, what a great much of people here at FF!

i've attached a picture a Rayne and her big brother Hunter.....all smiles!