The Forestry Forum

Health and Safety => Health and Safety => Topic started by: Ed_K on July 11, 2016, 07:34:39 pm

Title: My cancer journey
Post by: Ed_K on July 11, 2016, 07:34:39 pm
 This has turned out to be a very bad yr. First I lost my youngest son to pain meds in Feb. tried to work thru it but it's been very hard.
 2 months ago I fell off the skidder tearing a tri-cep, fell into ice chains broke a rib. Month ago kidney's started hurting, figured well here's #6 went to emergency rm yup #6 but on wrong side 5 on right. As they went thru tests found low blood cell cnt. more test, last week found out I have uncurable myloma, bone marrow cancer. Today they said it can be managed with treatments  8) . I start chemotherapy tomorrow.
 I knew something was wrong when I couldn't start the saw's on the monday Rita took me to the er. 2 day's later couldn't even pick them up. Really made me mad >:( .
 So I could use some prayer's, Thanks.
 It's hard to just sit here and type.
 I made a big mistake of looking it up on the internet, when you read 3-5 maybe 7 yrs it gets into your head and that's not good. Staff say I have a good chance of manage ing it for a lot longer  :) .
 I can't imagine not being to log again.
 Sorry for such a long thd.

Look up the International Myeloma Foundation. They have publications on Myeloma that will give you good information about the disease. Concise review is a over view of the different types of the disease.Understanding Fatigue will help you understand why your so tired all the time. Patient Handbook will explain what you have,tests you you really need and support care and where to find it.
 There's more publication's but these three are what you will need after the doctor's tell you,you have Myeloma.

 I found another publication from the Leukemia & Lymphoma Society that has very good info, it helps with understanding all aspects of Myeloma.
Title: Re: I'm not much for asking for help.
Post by: AlexHart on July 11, 2016, 07:41:53 pm
My gosh...   

Prayers sent.   Your post makes me ashamed at some of the stuff I get upset and depressed about.   

Also...  not to try to be rah rah or Mr. false hope and with the full disclosure that I don't know anything much about doctoring I know a few people (including my dad currently who just drove my log truck for me 2 days ago) that have gone way, way, way past the supposed expiration date on cancer diagnosis.  Its also much lower stakes but a few years back I when I had back surgery I was told (in quite exact words) that I was screwed and my discs would never heal and that I was probably all done logging but they healed.   And I'm still chopping away. 

Hang in there.   
Title: Re: I'm not much for asking for help.
Post by: 4x4American on July 11, 2016, 07:42:35 pm
That is a good run of bad luck...sorry to hear, will pray for you.  Thought I'd mention it, there's some 6 or 10 questions you're supposed to ask your doctor before you do chemotherapy.  I just watched some documentary on how it doesn't work like 94% of the time, and the doctors just put you on it because they make alot of $ on it.  I would do some research.  My mother had cancer and she didn't do chemo and ended up beating it with the prescribed pills.  Chemo could be a big hassle just to make a doctor richer.  Do some research.  My 2 cents.  Will pray, hope you beat it.  I think a positive attitude goes a long way with it, don't let it get you down.
Title: Re: I'm not much for asking for help.
Post by: red on July 11, 2016, 07:49:54 pm
Thoughts and Prayers sent . A good attitude can really help the body heal.
Title: Re: I'm not much for asking for help.
Post by: Jim_Rogers on July 11, 2016, 08:10:44 pm
Thoughts and prayers from the eastern side of MA for you Ed. hang in there and as said keep up good thoughts about kicking it's butt.

Jim Rogers
Title: Re: I'm not much for asking for help.
Post by: g_man on July 11, 2016, 08:15:38 pm
I am glad you told us - it must have been hard to do. Words mean so little but you have my prayers.

gg
Title: Re: I'm not much for asking for help.
Post by: BargeMonkey on July 11, 2016, 08:16:28 pm
 I'm sorry to hear your having trouble, and hope / pray for your recovery.
Title: Re: I'm not much for asking for help.
Post by: Oliver05262 on July 11, 2016, 08:26:31 pm
  Our prayers go out to you from SW Vermont. Ed, I have been a long time reader of your posts, and have come to respect your work and attitude toward life. Keep positive about the outlook, and don't forget you have the support of your family and the extended family here on the Forestry Forum. Make it known if any of us members can help you or your family in any way. May GOD's love reach down to you and bring you peace.
 Oliver and Harriett Durand
Title: Re: I'm not much for asking for help.
Post by: Jeff on July 11, 2016, 08:36:18 pm
Were here for you Ed,
Title: Re: I'm not much for asking for help.
Post by: samandothers on July 11, 2016, 08:41:32 pm
Please continue to talk and share.  Thoughts and prayers for you Ed.
Title: Re: I'm not much for asking for help.
Post by: lopet on July 11, 2016, 08:50:03 pm
Wow, you have been through a lot this year.   All the best to you  Ed.
Title: Re: I'm not much for asking for help.
Post by: WmFritz on July 11, 2016, 08:54:36 pm
I'm pulling for you Ed. Prayer's from my family coming your way.
Title: Re: I'm not much for asking for help.
Post by: coxy on July 11, 2016, 09:04:13 pm
so sorry to hear  and yes we are hear for you
Title: Re: I'm not much for asking for help.
Post by: dgdrls on July 11, 2016, 09:04:55 pm
Very sorry to hear of such a trying year.
Thoughts and prayers to you and your family.

D
Title: Re: I'm not much for asking for help.
Post by: thecfarm on July 11, 2016, 09:23:24 pm
I like your posts and the way you cut wood. Sorry to hear of your problems. I sure don't have the words to help. But I know I will be thinking of you. You live your life the way you should and then get dealt a bad hand.   :(
Title: Re: I'm not much for asking for help.
Post by: buzywoodliff on July 11, 2016, 09:26:46 pm
Prayers being sent up from Michigan.

Stay strong and keep us posted
Title: Re: I'm not much for asking for help.
Post by: ohiowoodchuck on July 11, 2016, 09:28:48 pm
My prayers go out to you and your family.
Title: Re: I'm not much for asking for help.
Post by: thatchipperguy on July 11, 2016, 09:40:19 pm
Praying for you!! My wife was diagnosed with breast cancer back in November...28 yrs old. She has not done chemo and is doing the dr Schulze incurable program. She is winning! Drs told her she would be dead 6 months ago If she didn't get chemo. God can answer prayer!
Title: Re: I'm not much for asking for help.
Post by: ellmoe on July 11, 2016, 09:50:54 pm
 Ed, so sorry for your tough times. I lost a son too, so I can understand what a kick in the gut that is. Now, dealing with everything else, well, that's just really rough. Prayers are flowing your way, hope your fortunes improve.
Mark
Title: Re: I'm not much for asking for help.
Post by: Puffergas on July 11, 2016, 10:20:22 pm
Bad year indeed! To be honest I lack the right words if there are any. May the force be with you.
Title: Re: I'm not much for asking for help.
Post by: treeslayer2003 on July 11, 2016, 10:27:17 pm
dam Ed, sorry to hear this. but don't give in man, you have no date on ya any where. we are all pullin for ya.
Title: Re: I'm not much for asking for help.
Post by: Plankton on July 11, 2016, 10:27:45 pm
Prayers have been said for you and your family from just over the hill here in charlemont.

Hoping for quick and full recovery!
Title: Re: I'm not much for asking for help.
Post by: redneck on July 11, 2016, 10:32:04 pm
prayers sent,  I hope things turn around for you
Title: Re: I'm not much for asking for help.
Post by: wesdor on July 11, 2016, 10:50:35 pm
Thoughts and prayers from Illinois.

My brother in law was diagnosed with multiple myeloma two years ago. After several months at the Mayo Clinic he is back to work and feeling great. In fact he was out mowing the lawn tonight. I can't promise how things will go for you, but have hope and get good medical attention.

You sure have had a string of bad luck.  Hope everything starts looking better soon.
Title: Re: I'm not much for asking for help.
Post by: lynde37avery on July 11, 2016, 11:09:05 pm
prayers from the Lynde family.
Title: Re: I'm not much for asking for help.
Post by: barbender on July 12, 2016, 01:20:21 am
     I'll be praying for you, Ed.
Title: Re: I'm not much for asking for help.
Post by: red on July 12, 2016, 04:37:43 am
Your not asking for help. You were just letting us be part of dealing with this nasty disease . Life can change very quickly . I believe in miracles and I am praying for your good health . But if we need to pray for a miracle I will pray for that too .
Title: Re: I'm not much for asking for help.
Post by: MJD on July 12, 2016, 06:04:28 am
Prayers sent from Wisconsin Ed, stay positive.
Title: Re: I'm not much for asking for help.
Post by: Seaman on July 12, 2016, 06:19:31 am
Praying  for you Buddy.
Title: Re: I'm not much for asking for help.
Post by: oldseabee on July 12, 2016, 06:22:46 am
Sorry to hear what has happened, to you, I'm not much on praying, but I said one for you, cancer seems to look for the good guys among us that try to live right. I've been fighting it for about 4 years, now a month into a new chemo to try it out, I'm like you,  just get mad cause I can't do what I used to do, just get out of breath taking a shower. Also said a little prayer for your family, it's got to be hard on them too.
I have this forum to give me a little way to give back, my brain seems to be ok so far but with a tumor between my eyes who knows what the next day will bring, brain drain or loss of sight. Just keep fighting, and don't give up. Woods people are tough, and there are a bunch here pulling for you.
Title: Re: I'm not much for asking for help.
Post by: LeeB on July 12, 2016, 06:47:44 am
My thoughts are with you.
Title: Re: I'm not much for asking for help.
Post by: Stephen Alford on July 12, 2016, 07:01:35 am
  Sorry to be reading this my friend , tough times but your the lad to get through this.  One step at a time, one day at a time. Thoughts and prayers going your way.  Stephen
Title: Re: I'm not much for asking for help.
Post by: Czech_Made on July 12, 2016, 07:19:20 am
Prayers sent.
Title: Re: I'm not much for asking for help.
Post by: Mooseknuckle on July 12, 2016, 07:36:12 am
Hey Big Ed, thanks for having the courage to share these tough times with us all. Its experiences like this that make me really think hard when I start stewing about something that is really no big deal at all. Just when you think you have it tough there is always someone else that is going through something much more difficult. You my friend are that person.  I can tell you that what doesnt put you down will only make you stronger. Like someone said previously, stay positive, lots of positive self talk, visualization, some breathing techniques to keep you grounded, and of course goal setting..... to first sharpen that saw then when the time is right pick it up, rip that cord and do what you do best!!!  Our thoughts and prayers are with you and your family hold strong Ed, Hold STRONG!!
Title: Re: I'm not much for asking for help.
Post by: teakwood on July 12, 2016, 08:19:05 am
Sorry to hear that. i wish you all the strength to overcome those issues! Hang in there, you will triumph!
Title: Re: I'm not much for asking for help.
Post by: scottj on July 12, 2016, 09:27:01 am
Just read the message you posted Ed. You are sure I'm my prayers. I've always heard these valleys we go through are for a reason even though we may not understand them at the time. If we put our faith and hope in our Lord Jesus Christ these valleys we experience will not be accompanied alone but with the greatest super power known to man. This is really the first time I ever posted anything and not really sure I'm even doing right lol but when looking around I felt led to respond. Blessings to u bro.
Title: Re: I'm not much for asking for help.
Post by: Texas Ranger on July 12, 2016, 09:38:41 am
Keep the faith, brother, prayers offered.
Title: Re: I'm not much for asking for help.
Post by: Gary_C on July 12, 2016, 10:05:56 am
Stay positive Ed. My father lived with one of those blood cancers for many years and at 92 years old it wasn't what got him. We are pulling for you.
Title: Re: I'm not much for asking for help.
Post by: Ohio_Bill on July 12, 2016, 12:10:09 pm
I am praying God gives you Peace, Hope and Wellness.
Title: Re: I'm not much for asking for help.
Post by: 78NHTFY on July 12, 2016, 04:01:33 pm
EdK--have always enjoyed your posts, but not this one!  That said, I don't pray much, but I have for you.  One day at a time, stay positive, eat right, and you will beat this thing....We're all with you!  All the best, Rob.
Title: Re: I'm not much for asking for help.
Post by: Autocar on July 12, 2016, 04:22:58 pm
Ed our prayers will be for you and your family, and I will put you on our prayer chain at church. Ive always enjoyed your post stay strong and in time your be back logging. And as you go thru this just remember you have a bunch of great guys praying and thinking of you.
Title: Re: I'm not much for asking for help.
Post by: Roxie on July 12, 2016, 05:01:06 pm
You're in my thoughts Ed.  So sorry you have to have this experience so close to the loss of your son.  Stay strong. 
Title: Re: I'm not much for asking for help.
Post by: Hilltop366 on July 12, 2016, 05:40:50 pm
Tough row to hoe Ed, wishing you all the best and will be watching for better news in the future.
Title: Re: I'm not much for asking for help.
Post by: mills on July 12, 2016, 05:56:49 pm
My prayer for you is that God bestows his strength and wisdom to help you through these ordeals.

Ed, I've really appreciated your common sense post through the years. Please log in when you can. We enjoy hearing from you.
Title: Re: I'm not much for asking for help.
Post by: Ed_K on July 12, 2016, 07:01:07 pm
 It's been a long day, I'd like to make comments but just can't. Thanks so much, it really does help.
Title: Re: I'm not much for asking for help.
Post by: thecfarm on July 12, 2016, 07:09:16 pm
I was thinking of you as I went upon my duties for the day.  :)
Title: Re: I'm not much for asking for help.
Post by: millcreek40 on July 12, 2016, 08:27:01 pm
Prayers from upstate New York to you & your family. Rob
Title: Re: I'm not much for asking for help.
Post by: gww on July 12, 2016, 08:50:23 pm
The post so far that speaks to your situation that resinates with me the most is the one that basically says that I can't believe that I was worried about my problims, they seem small compared to yours.  There is no real way that I know to give comfort.  It makes me think of the serinity prayer that basically say accept the thing you can't change and change the ones you can. Life is a struggle and some are faced with more then others.  Wishing with all my might that I might think of a way to help and hoping that my post doesn't make things worse.  You have what you have to face and there is no getting out of it.  May you find a way to have some blessing threw in along with the pain.
I am praying that things go as well as possible and wishing you only the best.
gww
Title: Re: I'm not much for asking for help.
Post by: Bruno of NH on July 12, 2016, 08:57:13 pm
Prayers for you and stay strong .
Title: Re: I'm not much for asking for help.
Post by: Piston on July 12, 2016, 09:47:47 pm
Thinking of you and your family Ed. It's never good to read bad news but I do believe that sharing it can make you stronger.
Title: Re: I'm not much for asking for help.
Post by: jwilly3879 on July 12, 2016, 10:15:59 pm
Prayers and best wishes for you. My wife was diagnosed with stage 4 ovarian cancer and the prognosis was 6 months to a year. It is now 10 years later and she is cancer free. Chemo worked for her. The best advice she got from my Dr. friend who also is suffering from cancer was to stay off the internet.

Hang in there.
Title: Re: I'm not much for asking for help.
Post by: Peter Drouin on July 13, 2016, 06:25:50 am
I wish you the best.
Title: Re: I'm not much for asking for help.
Post by: loggah on July 13, 2016, 07:05:25 am
Ed, Stay strong everyone is pulling for you !!! Don
Title: Re: I'm not much for asking for help.
Post by: isawlogs on July 13, 2016, 12:38:48 pm
 I am not very good with words of comfort, but don't give up..... Never give up. My daughter beat leukemia 12 years ago, with all odds against her, anything can be beat if one can fight enough to be it! Keep your mind in positive thoughts!!    Never, ever, ever give in.... Never!    :snowball:

  Marcel.
Title: Re: I'm not much for asking for help.
Post by: mf40diesel on July 13, 2016, 03:22:09 pm
Sending my thoughts to you as well.  As everyone else has said,  stay strong.  Best of luck to you and your family.
Title: Re: I'm not much for asking for help.
Post by: Magicman on July 13, 2016, 05:10:54 pm
Ed, My Prayers are with you during this difficult time in your life. 
Title: Re: I'm not much for asking for help.
Post by: 62oliver on July 13, 2016, 07:08:45 pm
You're in ours prayers Ed, I still laugh every time I think of when you said you baked your gearmatic winch bands in the oven when your wife was  at church, haha, so funny!!! Hang in there man!!
Title: Re: I'm not much for asking for help.
Post by: tantoy on July 13, 2016, 10:50:41 pm
thinking of you and all the truly positive answers you gave to me while working on my Garrett.
Title: Re: I'm not much for asking for help.
Post by: thecfarm on July 14, 2016, 07:54:01 am
Yes,good advice about staying off the internet.  :o  I had an MRI done for something. Found out I am missing a bone below my neck. Can shove a finger in there. Been like that for 40 years at that time. I forgot what it is called,can't spell it anyways. I looked it up on the internet and some claimed they had operated on it.  ::) And on and on it went. And I do mean on and on.I went back to the Doctor and told him all this and he looked at me and said,you made it this far without that bone,I kinda think you will make it longer.   :D  Dummy me.
Title: Re: I'm not much for asking for help.
Post by: DanG on July 14, 2016, 03:06:04 pm
Prayers are up from here, Ed. I hate the nature of the news, but I'm glad you shared it with us.  There is nothing pleasant about the road you're traveling right now, but clinging to your faith and your sense of humor will help to smooth some of the bumps.  I know you will miss logging, but sharing your accumulated knowledge is a way to keep yourself in it and your mind off of your troubles.  Hang in there Brother, and keep us up to date. ;)
Title: Re: I'm not much for asking for help.
Post by: Carson-saws on July 14, 2016, 11:31:46 pm
Wishing you all the VERY best Sir.  Stay strong and keep looking at that cup as half full. 
Title: Re: I'm not much for asking for help.
Post by: square1 on July 15, 2016, 05:37:52 am

 So I could use some prayer's, Thanks.


You got them!
Title: Re: I'm not much for asking for help.
Post by: WDH on July 15, 2016, 08:03:54 am
Ed,

Thank you for sharing this difficult news.  Like has been said, keep the faith and you can manage through this. 
Title: Re: I'm not much for asking for help.
Post by: Chuck White on July 16, 2016, 08:41:54 am
Thoughts and Prayers from us, Ed.
Title: Re: I'm not much for asking for help.
Post by: timberlinetree on July 17, 2016, 07:06:36 am
 Our hearts,thoughts and prays are with you and your wife! You both are some of the nicest people around! Need anything please let us know! Hang in their  and stay strong Ed k!
Title: Re: I'm not much for asking for help.
Post by: Ed_K on July 18, 2016, 07:43:53 pm
 Well when they tell you your amune system is going to get hit hard, believe it. I started chemo last Tue. and by midnight thursday was admitted to the hosp. with 103. temp came home yesterday and still no energy. But I'm still on schedual so it's a shot tomorrow. And keep from getting sick, worst is I can't have friends stop by to talk for 3 months.
Title: Re: I'm not much for asking for help.
Post by: samandothers on July 18, 2016, 07:58:54 pm
Sorry about the friends visits.  You'll need to let your fingers do your talking!
Title: Re: I'm not much for asking for help.
Post by: Ron Scott on July 19, 2016, 04:38:42 pm
Prayers sent for a soon recovery.
Title: Re: I'm not much for asking for help.
Post by: Ed_K on July 19, 2016, 05:59:37 pm
 Today I also got medicine, (it's kind of like cambium juice) to start building up my bones. If they would talk in terms I can understand it wouldn't be so bad  ;D .
Title: Re: I'm not much for asking for help.
Post by: gww on July 19, 2016, 06:28:17 pm
Ed
Quote
If they would talk in terms I can understand it wouldn't be so bad  .
Aint that the truth.
Good luck
gww
Title: Re: I'm not much for asking for help.
Post by: thecfarm on July 19, 2016, 09:25:07 pm
I read this thread each morning and each night.  :)
Title: Re: I'm not much for asking for help.
Post by: Magicman on July 20, 2016, 09:03:00 am
Thank you Ed for the update.  My Prayers will continue for you.
Title: Re: I'm not much for asking for help.
Post by: Ed_K on July 20, 2016, 12:01:05 pm
 Here's something I should have explained, I went to my regular doctor for pain so bad in my lower back that I couldn't bend over,and the last day in the woods I got so bad I couldn't start the saw. So doctor sends me over to the er they did a bunch of test, and one stood wayyy out.
 The white blood cell count was real low. That's how the found the cancer. That test should be part of a yearly physical. Once on the meds my back hurts less than it did 2 yrs ago.
Title: Re: I'm not much for asking for help.
Post by: Autocar on July 20, 2016, 12:35:27 pm
I agree with you Ed some test should be done every year at your check up. I have to go evey six months to get my blood pressure pills. I would give anything almost to get away from all the pills a fellow takes as he gets older. I'll tell you a joke and I hope it will bring a smile to your face. One sunday morning this little church was packed with people. All of a sudden satan rips open the back doors and comes running and screaming into the church. Peoples running like a bunch of barn rats trying to get out of a barn fire. About five rows back this old man just sits there. Satan walks up to him and says DO YOU KNOW WHO I AM and the old man say YEP I KNOW and satan says why arn't you scared of me. And the old man says IVE BEEN MARRIED TO YOUR SISTER FOR FORTHY TWO YEARS. Have a great day and our prayers are with you daily.
Title: Re: I'm not much for asking for help.
Post by: red on July 20, 2016, 02:55:07 pm
Stay strong and keep laughing .
Title: Re: I'm not much for asking for help.
Post by: Kezar on July 20, 2016, 10:04:02 pm
I am not a regular poster, but i feel like it would be good to tell you too keep your hopes up, no matter what. Despite being diffrent kinds of cancer (stomach and lung), my grandfather was diagnosed a little under 20 years before he ultimately passed away. The first time it appeared he was given a few months to live (at most), the second a few weeks, and the third and final was a few days, to a few weeks. One can never be certain, and you should always keep up your hope (and faith), in-front of any situation.
Title: Re: I'm not much for asking for help.
Post by: Stephen Alford on July 21, 2016, 06:19:36 am
   Ed when I went through it I parked my woods tractor at the back door, looked out the window at it every day.  Finally made it into the seat and eventually back to the woods.  The number they gave me was 18 months. I have always run detroits and my hearing is not so good. The issue is it has been slightly over 18 years... hope I did not hear him wrong.   :D    Hang in there buddy it gets better.   :)
Title: Re: I'm not much for asking for help.
Post by: Ed_K on July 21, 2016, 09:39:52 am
 Thanks everyone, liked the joke  :D . I will not give up believing I'll get to cut again. Rita was shocked driving in last night, I got the pole saw out and trimmed branches off the driveway so I can sit on the deck and see who drives by  ;D . 1/2 hr to walk down and back cutting small branches. They didn't tell me not to walk around, after loosing all my muscle's and strength in 95 from disk op, I'm not standing around this time. All the positives of time you all have spoken have really helped.
Title: Re: I'm not much for asking for help.
Post by: Roxie on July 21, 2016, 02:13:17 pm
So happy to hear you are staying positive!   8)
Title: Re: I'm not much for asking for help.
Post by: timberlinetree on July 22, 2016, 06:00:42 am
And happy to hear your moving around and got the branches cleared. 8) 
Title: Re: I'm not much for asking for help.
Post by: thecfarm on July 22, 2016, 06:12:34 am
Jump in your car and head for Chesterville,ME. Pole saw too!!!  ;D  I have limbs on the edge of the woods that are hanging down in the field. I own one side of the field,but the longer one is not mind. I just cut of what over hangs. Seems like the more I trim,the more I need to trim. The lower ones hold up the ones above it. They sure do reach for the sun light.
Title: Re: I'm not much for asking for help.
Post by: timberlinetree on July 24, 2016, 06:53:23 am
Hope your felling OK. If not running the equipment for awhile, moth balls,full tank of fuel,not shure what else to do for short term storage but might be something to think about. If you need help just let us know. Keep strong and you are in our prays.
Title: Re: my cancer jouney
Post by: Ed_K on July 24, 2016, 11:01:38 am
 It doesn't take much to wear me out, kinda over did it again yesterday, now I'm extra sore and real tired. I'm thinking that 2 days after a shot, is when it gets to me. I have this week off from the shots then we start 2nd series Aug 2. It's a awful way to take a vac. I haven't had vacation's since I quite working in a machine shop in 99. Forestry expos were my vacations  ;D .
Title: Re: I'm not much for asking for help.
Post by: motohed on July 25, 2016, 06:53:22 pm
Will be praying Bro , I feel your pain .
Title: Re: my cancer jouney
Post by: Ed_K on July 28, 2016, 08:00:25 pm
I had a second consultation with the specialist today, he wants to add another month to the chemo treatments. He feels I'm responding good to it. It's supposed to work on reducing the pain, which I feel is starting to work. I can get around the yard pretty good picked some raspberries, reworked the band mill, (making the tunnel more open for bigger logs) that would have taken couple hrs but took me 3 days. Also started pulling deck screws one board a day, it is real easy to wear out, but I don't want to lose all the muscles I have left.
 The doc has a few different treatments that he explained could be used later on and it didn't scare me as much as when they took out some of my bone marrow and a bone chip for a base line of the treatment, that hurt more than when the spring pole whacked my nose and gave me a black eye and almost made me pass out.
Title: Re: I'm not much for asking for help.
Post by: thecfarm on July 28, 2016, 09:41:00 pm
It all sounds good.  :)
Title: Re: I'm not much for asking for help.
Post by: timberlinetree on July 29, 2016, 07:23:05 am
Nice to hear your getting some stuff done and the pain is getting a little better. Those raspberries sound good. digin1
Title: Re: I'm not much for asking for help.
Post by: barbender on July 29, 2016, 08:46:20 am
Ed, I'm glad to hear your able to get out and do a few things and admire your fortitude. I was just visiting with a dear friend and neighbor who was recently diagnosed with cancer. Inoperable, untreatable, no good news :( She said she doesn't even want to go in for her appointments anymore, all they do is bring her down. People keep telling her she has to face reality. She said she doesn't want to, and now this is the point I want to share that is true no matter the situation- we have the present. Today. None of us are promised any more than that. We get down when a Dr. is telling us what is going to happen in a month, or 6, or a year. Her husband was diagnosed with ALS almost 25 years ago, and given 3 years tops. He kind of got sick of waiting to die after about 5 years I think ;) Ed, I am praying for a speedy and full recovery for you, and that you will feel well enough to enjoy every day going forward. God bless you!
Title: Re: I'm not much for asking for help.
Post by: kensfarm on August 08, 2016, 12:05:55 am
that hurt more than when the spring pole whacked my nose and gave me a black eye and almost made me pass out.

Ouch.. my goal for 2016 was to not have to visit the ER.. got 5 staples in my head in January.. so wasn't off to very good start.  Prayers and a God Bless you.. hope you are feeling better. 
Title: Re: I'm not much for asking for help.
Post by: thecfarm on August 08, 2016, 07:03:59 am
Ed,good to see you posting on some other threads.
Title: Re: I'm not much for asking for help.
Post by: Ed_K on August 08, 2016, 09:01:25 am
 5 staples, ouch  :( . I'd rather have stitch's the staples hurt more when they pull them out.
 I can't give up reading and posting on the logging and forestry topic, I really enjoy seeing what others are doing around the world.
Title: Re: I'm not much for asking for help.
Post by: gww on August 08, 2016, 11:12:54 am
I got burned on my lower legs and they skin grafted with staples.  I was still having staples surface a year later.  I bought a little wire cutter and would chop them in half and twist them out.  I find all pain sucks and am a big baby even with just the flue.  Mostly in all things we just have to muddle through as well as we can.  Ed, as always, I am wishing you the best.
gww
Title: Re: I'm not much for asking for help.
Post by: Holmes on August 09, 2016, 11:13:12 pm
Sorry to hear about your difficult times. I wish you wellness .  I've found that a pole saw can be good medicine. Take your time and get the next 10,000 branches cut. That could take years or a weekend. :D Get well.  Dana
Title: Re: my cancer jouney
Post by: Ed_K on August 15, 2016, 08:11:03 am
 Last week the lab (blood test) #s were too low to finish round 2 so this week is catch up. There's nothing I can do to change the #s. I asked if eating or drinking something would help, but it's all to do with the drugs they use to kill the bad cells. Drinking lots of water does wash the bad cells out tho.
 So far the side effects aren't to bad, I'm surprised after hearing other peoples stories.
Title: Re: I'm not much for asking for help.
Post by: Chuck White on August 15, 2016, 05:30:49 pm
Glad to hear things are doing ok for you Ed.
Title: Re: I'm not much for asking for help.
Post by: Okrafarmer on August 15, 2016, 08:07:51 pm
Reading this all just now-- praying for you, Ed!
Title: Re: I'm not much for asking for help.
Post by: thecfarm on August 15, 2016, 08:23:52 pm
My Father went through that. He would have a treatment and I would be cutting wood. Than he would come and cut with me. Never know how it will affect you.
Title: Re: my cancer jouney
Post by: Ed_K on August 16, 2016, 08:04:22 am
 I felt really good yesterday and now I can hardly move. Told Rita that if I could feel like yesterday,every day, I'd go back to cutting  :D . Kinda over did it  :o .
Title: Re: I'm not much for asking for help.
Post by: red on August 16, 2016, 08:19:29 am
Maybe this afternoon you will feel better. Mornings can be tough. Your Job is to eat sleep and go fishing.
Title: Re: my cancer jouney
Post by: Ed_K on August 16, 2016, 08:01:12 pm
 Went to my appointment today and the #s they go by from blood tests were lower than last friday, so I missed another treatment  :( . Way this is going it'll be dec before I get this first go round done  >:( . Kinda depressing, I'm not good at waiting.
 I keep asking if there's a way to get the #s up and get told nope,just have to wait and rest.
 Here's a picture of different Multipotential hematopoletic blood cell's to give someone an idea of which blood cells are affected by luekemia + other's in the left column  and cells affected by multiple myloma in the right column. As we understand it.

 

 (http://www.forestryforum.com/gallery/albums/userpics/10257/multipotential_cancers.jpg?easyrotate_cache=1473596413)

Title: Re: I'm not much for asking for help.
Post by: Okrafarmer on August 16, 2016, 08:55:42 pm
Have they told you to stop eating sugary things? Just wondering.
Title: Re: my cancer jouney
Post by: Ed_K on August 19, 2016, 07:19:17 pm
 All most at the beginning they told me no sugary food.
 Today i finally got back on track, I asked awhile ago if there was a way to get the #s up enough to be able to get back on track and they didn't have an answer. I spent the last two days napping and I think the sleeping and not trying to work some is what got the #s up enough.I'm now hoping that the real bad pain in my right shoulder and hip will go away.
 I quit drinking 17 yrs ago and got hooked on candy bars, that is really bothering me now (miss my candy).
Title: Re: I'm not much for asking for help.
Post by: Okrafarmer on August 19, 2016, 08:08:23 pm
Yeah, it's no fun giving up stuff you enjoy. Whether it be candy bars, or logging.  :-\
Title: Re: my cancer jouney
Post by: Ed_K on August 25, 2016, 07:48:38 pm
 Had my 3rd visit with the doctor / specialist today. He's happy with the results so far, said that this first round of chemo was a little harsh, but it had to go this way to keep my kidney's from failing. He was right about the harsh part, it was hard to take. I still have 1 more round to finish. But then I can go on some sort of pill that won't be as bad as the IV. I'll still have to do the IV for another drug (I call it cambium builder  :D) it give me a lot of energy. Things seem to be looking up, just wish I could go back logging.
Title: Re: I'm not much for asking for help.
Post by: Okrafarmer on August 25, 2016, 07:54:47 pm
Keep your chin up, boss-man! Sounds like progress!
 8)
Title: Re: I'm not much for asking for help.
Post by: thecfarm on August 25, 2016, 08:21:11 pm
All in time. I suppose you have watched all the youtube logging videos??
Title: Re: my cancer jouney
Post by: Ed_K on August 26, 2016, 08:27:15 am
 I don't watch many u-tube videos, I can't sit still for long  ;D . Whats really funny is, the nurse that does the IV s and shots keep asking me if I back to my normal routine  :D and the doctor tells me NO chain saws  :( . Guess she thinks everyone works at a desk  :o .
Title: Re: I'm not much for asking for help.
Post by: Jeff on August 26, 2016, 12:13:27 pm
Did the Dr. give you a specific medical reason why you can't use a chainsaw if you are honestly feeling like you can?
Title: Re: I'm not much for asking for help.
Post by: doctorb on August 26, 2016, 09:58:33 pm
Sorry, I've been following this from too far away....

Many patients with multiple myeloma, and other blood related cancers,  have a tendency to be "clotters".  Meaning...they can form blood clots for no discernible reason.  Does your medical regimen include a blood thinner?  I can assure you that, if you are anti-coagulated, the "no chainsaw rule" is standard and sound advice. 

My continued good wishes to you.
Title: Re: I'm not much for asking for help.
Post by: Okrafarmer on August 26, 2016, 11:42:28 pm
....Many patients with multiple myeloma, and other blood related cancers,  have a tendency to be "clotters".  Meaning...they can form blood clots for no discernible reason.  Does your medical regimen include a blood thinner?  I can assure you that, if you are anti-coagulated, the "no chainsaw rule" is standard and sound advice....

I'm not a doctor, but YIKES!  :o --uh, what he ^ said.
Title: Re: I'm not much for asking for help.
Post by: drobertson on August 27, 2016, 08:34:49 am
Just getting to this, and am so sorry Ed for all of your struggles,  we will be keeping you in our thoughts and prayers.
Title: Re: my cancer jouney
Post by: Ed_K on August 27, 2016, 09:46:34 am
 Hi Jeff, and DoctorB. The medical reason for no saw is all the pain meds I've had to take. I'm more scared of pain meds than than the cancer, 21 yrs ago when I had a back op I got hooked on pain killers. It was awful getting off them.
 The doctor and nurses keep telling me to be careful of get cut, but when they stick a needle in it doesn't bleed a bit, so I don't know if I'm anti-coagulated.
 I don't remember if there's a blood thinner in with all the different drugs I'm taking, Rita takes care of which ones and when cause I can't keep them straight, to much sawdust in my brain  ;D .
 Thanks everyone for the prayers, I know their helping. While waiting one day we talked to two people who have some real serious blood related cancer can't remember the names but they ended with syndrome, so I'm calling mine ( mild myeloma ).
Title: Re: my cancer jouney
Post by: Ed_K on August 31, 2016, 06:22:30 pm
 I started session #3 yesterday, it been so long between 2 and 3 that I think all the chemo drugs were totally out my system and I started to feel better. Now #3 is kicking in and I'm starting to get tired real quick. It's depressing with the many ups and downs. I have to have blood test every time we go for a treatment,if the #s are down to low they say nope can't treat you today and home we go.
 I don't know how Rita does it, all her friends at work are on happy pills, and she won't even talk to her doc about how she feels.
Title: Re: I'm not much for asking for help.
Post by: gww on August 31, 2016, 08:36:37 pm
Ed
Not to down play your situation but it is a bunch of extra pressure on those around you.  It puts the truth to the old saying, "misery loves company"  I am sending out a prayer for those around you also. 

As far as ups and downs go, It is nice that every once in a while a few ups are thrown your way every so often.  The above statement is out of context to what you were writing about but it is a general term that usually has some truth to it.  I hope you get lots of ups.

I only ever type a reponce to your sutuation in an attempt to give some kind of comfort.  If comfort is not what my responces cause, then you have my heart felt apologies.  I am a crass type of guy and sometimes I get it wrong but never on purpose.

Wishing you and yours the best.
gww
Title: Re: I'm not much for asking for help.
Post by: Ed_K on September 01, 2016, 08:42:41 am
 gww, your response is very well appreciative, I thank you for the prayers, Rita needs them more than me.
Title: Re: I'm not much for asking for help.
Post by: timberlinetree on September 05, 2016, 08:18:19 am
Sorry to hear the up and downs are real tuff on both of you, but glad to hear #2 is behind you and your on #3. Glad Rita isn't on the  happy pills. There is good stuff going on and sometimes it's REALLY tuff to find,but it's there. Hang in there and be strong! I know your as tough as nails( or oak)! We are praying for both of ya!
Title: Re: My cancer journey
Post by: Ed_K on September 09, 2016, 09:25:57 am
 Well #3 is going just the same as #2, half way and numbers are to low and had to skip the third belly shot. The chemo drugs make you hurt a lot but constipation pain is worse, I finally broke the problem, they changed the stool softner and I decided I liked prune juice  :D . But for 4 days it was REALLY bad.
Title: Re: My cancer journey
Post by: Roxie on September 09, 2016, 09:47:48 am
Bless your heart. 
Title: Re: My cancer journey
Post by: Gary_C on September 12, 2016, 10:50:23 pm
Ed, sure glad to see you are progressing.

I too know how bad that combination of drugs, constipation and poor diet can be. Sometimes it's the worst part of any treatment.
Title: Re: My cancer journey
Post by: thecfarm on September 13, 2016, 07:36:41 am
Hang in there. I enjoyed that picture of the two hats.   ;D
Title: Re: My cancer journey
Post by: WDH on September 13, 2016, 11:04:05 am
Ed,

My thoughts are with you. 
Title: Re: My cancer journey
Post by: samandothers on September 13, 2016, 08:32:20 pm
Prayers still said for you.  Hang in and pull move on!  Hugs to Rita.
Title: Re: My cancer journey
Post by: Ed_K on September 14, 2016, 09:11:32 am
 Thanks, to all. I don't like the pain meds but after missing the night time round and the awful pain all night I don't want to do that again. I can only explain how it feels as a burning sensation inside the muscle and cramps all bunched together. We have a meeting with the doctor tomorrow, I hope he explains how I'm doing with this procedure, I feel like they change the dosage or something. #3 session is a lot more of a problem, trying to stay energized. I need to keep moving but I'm so worn down I'd rather sleep.
Title: Re: My cancer journey
Post by: Ed_K on September 17, 2016, 09:22:03 am
 Thursday I had the appointment with the doctor, he's happy with the results of the chemo so far but was concerned with the after effects of the iv medicine. So he's changing up the IV one and the belly shot one. The IV will now be a pill and the shot a different type. I get to have another week off from the meds, to clean out whats still in me. I complained about the burning and numbness and he prescribed a pill to take (3 a day) by pill 4 I was totally out of it. I'd wake up look around and pass right back out, at times I felt like I was having hallucinations, I'd think I was picking up papers in my lap and moving them around and there weren't any papers near me. I quit takin them pill right then, they scared me more than the pain I have. I also was told, I'd finish up the 6 series run I'm on now then I'll go to Mary Hitchcock up in Hanover N.H. were they will take the clean blood cells and grow more with them. Then they will do a high dose of chemo drugs and kill all the bad cell that are left in me, then put the good new cells back in. This procedure really scares me. I have hopes that after they do this I'll be able to get a shot once a month or so and take a pill once a day to manage the cancer and be able to work again  :) .
Title: Re: My cancer journey
Post by: samandothers on September 17, 2016, 09:26:57 am
Good to hear the Doc is good with progress.  Sorry to hear the struggle with pain and results of pain pills.  I can not imagine the apprehension associate with all this.   Praying for you.
Title: Re: My cancer journey
Post by: Chuck White on September 17, 2016, 10:02:42 am
It's absolutely amazing, the things they can do nowadays!
Title: Re: My cancer journey
Post by: Okrafarmer on September 18, 2016, 01:54:52 pm
Ouch, I'm right there with the frightening halucinations. Last year I was really, really, cotton-picking sick, and I didn't know why. I couldn't even keep water down, and my mind began to shut down as I lay there wallowing in sweat. then I started halucinating. (I wasn't on any meds or drugs of any kind). I would see all kinds of neon-glowing geometric shapes moving around in front of me, and I felt compelled to manipulate them into some sort of order, but I could only assert minimal control over them. All this with extreme nausea, thirst, throat burning with pain, and head pounding. Eventually I got taken to the doctor, who found out it was a bad sinus infection. Who knew. Antibiotics cleared it up.
Title: Re: My cancer journey
Post by: thecfarm on September 18, 2016, 06:51:59 pm
Meds can affect us all differently. Keep at it,there must be something for you out there.
I've seen my wife throw 3-4-5 hundred dollars worth of pills away. Paid for by insurance,but still a waste.   ::)  We told the Dr. just give her about 5 and see what happens.
Title: Re: My cancer journey
Post by: timberlinetree on September 19, 2016, 05:54:28 am
Glad to hear your making progress. Praying for you.
Title: Re: My cancer journey
Post by: red on September 27, 2016, 09:35:26 am
I came across a YouTube video this morning . . Chemo this morning , Garth tonight . Enjoying the Dance . In Nov 2014 Garth Brooks stopped a concert after seeing this womans sign in the crowd . In Jan 2015 Garth followed up by saying the woman was Cancer Clean. . Stay strong ED . . Your in our Thoughts and Prayers
Title: Re: My cancer journey
Post by: kensfarm on September 27, 2016, 09:23:45 pm
I would def. talk to the doctor about your pain meds.. they can try something at the lower  range like generic percocet.  Enough to help you w/ the pain and be functional.. not knock you out half the day.  Hope you feel better..  Ken
Title: Re: My cancer journey
Post by: Ed_K on September 29, 2016, 10:21:41 am
 Well I'm back awake, After almost 3 weeks we have found that this med that was supposed to deal with the painfull burning of the muscle tissue and numbness in my arms and legs, had a bad reaction to me which made me sleep all to time. It was all most as bad coming off them than the pain of not have taken them at all. At one point I got where I couldn't stand the smell of food that if I was straight would have loved to eat. then the anxiety got to be too much. On monday Rita took me to the er as I was having what I thought was that I couldn't breath. They did a bunch of test and found nothing so they sent me home. Yesterday we had a meeting with the Nurse Pract. and she said to try the anti nausea, when we got home we found the bottle also say it's for anxiety. What a difference by 3pm I was up, not feeling sick tired or like I couldn't breath. I guess the meds for anxiety are also called happy pills. Anyways I rather take them than something that makes me sleep 24-7.
Title: Re: My cancer journey
Post by: gww on September 30, 2016, 08:29:01 am
ed
happy good.
gww
Title: Re: My cancer journey
Post by: Carson-saws on September 30, 2016, 09:07:22 am
Ed...from my home to yours...prayers and best wishes to you and those around you.  Obviously you are a very strong person and those that support you love and care deeply for you.  Keep staying strong Sir and "keep that cup full"...
Title: Re: My cancer journey
Post by: Ed_K on October 08, 2016, 07:26:55 am
 I've started a second type of drug therapy other than having to have more I.V. injections it's working pretty good less pain and numbness. They are having a rough time getting the iv needles in, took two try's each day and I'm on a thur, fri, treatment. Both arms hurt a little from that but overall pain is down a lot.We talked about a port stile of injection for the iv's but I'm too active I think for this.
 No one can tell us how long this treatment will go on for,but after this it'll go the the stem cell treatments.
Title: Re: My cancer journey
Post by: red on October 08, 2016, 09:46:47 am
Thoughts and Prayers from miles away
Title: Re: My cancer journey
Post by: thecfarm on October 08, 2016, 08:08:29 pm
I'm a thinking of ya.  :)
Title: Re: My cancer journey
Post by: Ed_K on October 15, 2016, 09:22:03 am
 On wed. we had a meeting with a doctor who's a specialist in Multiple Myeloma at Dartmouth Hitchcock in N.H. We went over my past history, what medicine's I have been on, which ones work and which ones didn't. Now that they have switched me to a new drug it seems to be working better, the first one I think was too strong and I couldn't keep my blood counts up enough to follow thru week to week. They also made me hurt a lot. So there are changes they can do to individualize for each person's system. The doctor will have us come back for another meeting in 6 to 8 weeks to explain what and how the stem cell transplant will be done and give us a tour of the facility. This procedure is where they use my own blood stem cells grow more and freeze them, then when I'm as low as can be in knocking down the bad blood cells and in remission they will use a very powerful chemo, before they go with the transplant and 2 weeks of isolation. After all this I will have to be tested periodically to keep the myeloma in check. Then there will be follow up treatments to keep it in remission. I finished cycle 1 day 4 of the new treatment and feel a little better so here's hoping this new treatment will work better than the first and I can finish cycle 1 have a week off and do cycle 2 and on.
Title: Re: My cancer journey
Post by: Roxie on October 15, 2016, 01:11:10 pm
Sounds encouraging!   :)
Title: Re: My cancer journey
Post by: Gary_C on October 15, 2016, 01:23:02 pm
That's good news Ed.
Title: Re: My cancer journey
Post by: red on October 15, 2016, 04:45:17 pm
Excellent !
Title: Re: My cancer journey
Post by: Jeff on November 07, 2016, 01:53:09 pm
Any updates Ed?
Title: Re: My cancer journey
Post by: Ed_K on November 08, 2016, 10:58:53 am
 I started cycle 2, days 1 and 2 last week, it's supposed to be a milder drug than the first one. I get one type of drug on Thur. and Fri. and they have a pill that I take along with the treatment, the pill goes for 21 days then I get a week off and start over this week will be cycle 2, days 8 and 9. This cycle seems to make me a lot shakier and tired so I'm taking a anxiety pill to calm that down. I've lost a lot of feeling in my fingers,so it's hard to pick things up. At the end of the month I go back to Dartmouth Hitchcock to talk to the cancer specialist. They will look over the test's and decide how much more of this drug I need to take or stop. If they decide to stop they will start taking good blood cells out and grow them. Then they will do a powerfull kemo that kills all the rest of the bad cells and put the new-good cells back. After that I don't know what's next.
Title: Re: My cancer journey
Post by: drobertson on November 08, 2016, 01:48:56 pm
Keeping you in my thoughts and prayers ed, not much to say except hang in there!
Title: Re: My cancer journey
Post by: timberlinetree on November 12, 2016, 05:06:05 am
Your in our thought and prays too.Hope you Get well soon!
Title: Re: My cancer journey
Post by: Ed_K on November 18, 2016, 04:31:57 pm
Yesterday I went to do week 3 of the new chemo and they informed us that the blood platelets are to low and said I'd have to wait till the platelets grow some more good ones. So now I have to wait till Dec 1st to get going again. This happened when I first started way back when they tried the heavier chemo back in Jul, at least I got thru 2 weeks before the the chemo got to be to much. The numbers for good platelets run from 150 to 460, the doctor ok's it as long as it's at least 50 this weeks blood test came back at 34. The chemo really can take a toll on the body. I need to rest more but have a hard time doing so, I rather be doing something to keep my mind off all that's happening to me.
Title: Re: My cancer journey
Post by: thecfarm on November 18, 2016, 08:56:42 pm
Thanks for the update. I was hoping for better news. I think of you as I go about my day. My Father had that dreaded C word too.  :( Not many familes can get by without it.
Title: Re: My cancer journey
Post by: Bandmill Bandit on November 25, 2016, 07:39:20 pm
So Sorry. My post was meant for the standing in need of prayer thread.

You are on our families prayer list, Ed! 
Title: Re: My cancer journey
Post by: gww on November 25, 2016, 08:18:47 pm
Life will be hard for all some of the time.  My uncle just had a biopsy and will know more around wends.  He had been operated on and had chemo a few years ago and this is hard news.  Bandmill, my dad has early alzhiemers and is much younger then your mother.  You have a prayer from me. You still do also ed.

I never know what to say except to point out that muddling through is usually what is forced on people and knowing that even in the worst of times something will happen that will usually make you glad you at least got to see it or feel it or know it.  Those times might be spred out more then they should be for some and not given out to all equally but usually everybody that is breathing will still get a chance to experiance a blessing.  I am not trying to say this in a talk down manner from someone who is not in the know as I am not walking in your shoes but more as a core beliefe that I have and trying to get others to watch for such times.  I am not very tough and hope that I have the courage to remember this in my hour of need.  I am not telling you I will but do believe it in my soul now that some blessing will come that you will be glad you made it through the pain to see.

As always, I hope my post are never hurtfull in any way.
Wishing bandmill and Edd only the best.
gww
Title: Re: My cancer journey
Post by: Ed_K on November 26, 2016, 10:14:53 am
 I pray for each of us also, night prayers some times are hard to finish as the night time pills catch up with me. But I do believe they help all of us.
Title: Re: My cancer journey
Post by: Ed_K on December 01, 2016, 09:50:56 am
Yesterday we went to Dartmouth for a 2nd visit with the doctor who will be in charge of my stem cell transplant procedure. He went thru all the pros and cons of having this done, and kinda put me at ease with it. First thing they want to see is finishing this type of chemo treatment I'm doing now. I need to finish at least 4 sessions, I made it thru 2 and was supposed to start #3 today. When we got home last night there was a message that the blood test I did early yesterday morning showed a too low white blood cell and want to postpone another week. I've already had 2 1/2 weeks off and thought everything would be ok. We call this morning to ask why and they decided to try a blood test again this morning, so I'm hoping a day helped. It just seems that I get set back to much, I know it all to do with the body but it's hard to feel like this will go for ever. The specialist wants to harvest the stem cell as soon as possible, which I like. Once I get the chemo therapy over then the specialist will do the transplant of stem cells. It sounded scary of what and how this is done, but by the time we finished I was ok with it and want to get it done and over so I can be close to where I was before getting this cancer. I have decided to put in for social security and retire from full time logging, this depresses me but I'll still try to find a few small cordwood jobs to keep me busy. I'll also have the sawmill to make some lumber for projects and a small wood shop. The 10 acre maple orchard will get more attention also.
Title: Re: My cancer journey
Post by: catalina on December 01, 2016, 10:05:19 am
Keep up the positive thoughts Ed. The body is a complex thing, all in time. Gene
Title: Re: My cancer journey
Post by: Ed_K on December 01, 2016, 06:08:47 pm
 My blood test this morning turned out to only be .1% higher,but it was good enough that I could start my 3rd cycle. I know that they can only go as fast as my body can take, I can get impatient when things don't move along as fast as I think they should. At this point in my life I'm going to have to learn to slow down, which won't be easy as I've always been on the go.
Title: Re: My cancer journey
Post by: thecfarm on December 01, 2016, 06:12:23 pm
Get your SS benefits and sit back and enjoy life!!!
You worked your whole life. And than some.
Title: Re: My cancer journey
Post by: Autocar on December 01, 2016, 07:29:51 pm
My prayers are still with you Ed it takes alot of strength to keep a positive attatude. Hang in there and stay strong.
Title: Re: My cancer journey
Post by: Ed_K on December 02, 2016, 08:13:00 am
 Thanks cfarm and Autocar,
 I did sign up for ss benefits as I worried that one income won't be enough, used a lot of the 401 as a, "repair iron account"  :) . I have a friend who has the same cancer diagnosis, he has been fighting it for 3 yrs now. So I worry as Rita's insurance premiums keep rising I won't be able to pay that and help with house money. My part was to pay the taxes,repairs and extra propane when we needed it. So hopefully ss will keep us ahead and building things in the work shop will be the extra for going out to eat or presents that we never did much cause I needed to get this job done and on to the next. The worst was never spending much time with my sons when they were young.
 The young logger's and trucker's need to be reminded of this,it's not a good experience.
Title: Re: My cancer journey
Post by: gww on December 02, 2016, 10:48:52 am
Edd
Most parents have those same feelings about their kids.  If you have kids when you are younger, you sorta have no choice but to pursue your work pretty hard if you want to provide.  The good thing is that most children remember it differrent then you remember it and really love you for it and also form their work ethic from you.  I believe this is why god invented grand children.  By then you are a little more patient and not quite as wrapped up in to making it in the world.
Regretts can be a waste of time unless they help you improve something that is going on currently.
Good luck
gww
Title: Re: My cancer journey
Post by: BradMarks on December 08, 2016, 01:37:56 pm
gww:  well said and true
Title: Re: My cancer journey
Post by: Gary_C on December 08, 2016, 09:21:40 pm
Hang in there Ed. I'm still pulling and praying for you and I know you can pull thru this one.

Gary
Title: Re: My cancer journey
Post by: Ed_K on December 09, 2016, 06:54:12 pm
 If I can get thru this cycle 3, it'll be the first time we made a whole cycle. Yesterday and today made cycle 3 day 3 and 4. A cycle is 6 days of treatment then a week off. Once I make 6 cycles the specialist thinks I'll be low enough on bad blood cell in the bone marrow to harvest the good stem cells. This part I'm not to worried about, but then they will put me in the hospital for 2 weeks and give me a massive dose of chemo drugs to kill off all the rest of the cells in the bone marrow, then they put the harvested cells back in and they will jump start new good blood cells to grow in the bone marrow, this is the part that really scares me. I thought I'd be stuck in a bed for the 2 weeks but they said no that I would be getting out of bed every day and walk around for a mile walk. This I liked as I have to be moving or I'd go nuts.
Title: Re: My cancer journey
Post by: samandothers on December 11, 2016, 08:46:19 am
Glad to hear you were able to start on the cycle and moving forward.  Prayers for you! 
Title: Re: My cancer journey
Post by: Ed_K on December 16, 2016, 09:12:45 am
 Last Sunday I slipped on some ice and fell down pretty hard. Hurt my right hip and arm,got a small black and blue on the back of my arm. I've fell down harder at earlier time in my life and didn't think this time was that bad. Well I mentioned it yesterday and everyone at the oncology dept went nuts. They made me get x-rays and a full exam with the doctor and all. Wow what a time, I got scared they wouldn't give me the cycle 3 drugs for this week and I'd miss doing a full cycle again. I haven't made a full cycle yet but it was always for blood test coming back to low. After all the x-rays and scares they let me have the chemo and all and today I finish the treatment, A first for me  8) . They also told me that I need to tell them if something happens again, I have to let them know right after, seems that you can break bones real easy with any kind of bone marrow cancer, just by bumping into something or falling. I'm happy to finish cycle 3 today  8) .Maybe in Jan. they can start the harvest of good bone marrow cells,and then get me into remission. I hope once into remission that I gain strength and do some logging. My truck driver has been helping to get some r/o logs out on the job I was working when all this started. I sit on the tractor or skidder depending on how big the logs are and he cuts the logs out and runs the winch,and I drive them to the landing. We have 3 loads go out and 1 1/2 loads to go and the $ part of the job will be done and I'll clean up the cordwood next spring/summer when I have the energy.
Title: Re: My cancer journey
Post by: petefrom bearswamp on December 16, 2016, 07:05:30 pm
Thinking of you here Ed.
I am not a spiritual man but all the best in your battle.
Title: Re: My cancer journey
Post by: Ed_K on December 16, 2016, 07:23:03 pm
 Thanks to all who are still checking in and thinking/praying for me & Rita, we keep going by this and looking forward.
Title: Re: My cancer journey
Post by: thecfarm on December 16, 2016, 07:55:17 pm
I'm a thinking of ya through out my day.   :)
Title: Re: My cancer journey
Post by: barbender on December 17, 2016, 12:30:57 am
I will keep praying for you, Ed. You sound like one tough son of a gun to me ;)
Title: Re: My cancer journey
Post by: Ed_K on January 14, 2017, 05:39:27 pm
 I finished my 4th cycle yesterday  8) . But now I'm having trouble with where they put the injection needle in, I think it was loose and some of the chemo got out of the vein and thinned the skin around the injection site.When we took the bandage off the tape pulled some skin off and and it's been bleeding some ever since, After super and had to re-bandage it after shower. We wont know what's wrong till Tues cause weekends and holidays they just say go to the ER, and all they do is more blood test that have already been done on last Thur.
Title: Re: My cancer journey
Post by: thecfarm on January 14, 2017, 06:01:14 pm
Hang in there.
Title: Re: My cancer journey
Post by: Bruno of NH on January 14, 2017, 07:19:01 pm
Thinking of you Ed
Title: Re: My cancer journey
Post by: Ed_K on January 15, 2017, 09:41:26 am
 It stopped bleeding some time last night, so now I feel a little better that it may not be as bad as we thought. Thanks to everyone for keeping up with my Journey.
Title: Re: My cancer journey
Post by: drobertson on January 17, 2017, 06:45:07 pm
In our prayers Ed,  as mentioned, you are one tough son of a gun!  Thanks for the updates, lots of folks praying for you and the family,
Title: Re: My cancer journey
Post by: Autocar on January 19, 2017, 07:43:18 pm
Ed it amazes me the strength you show with what your going though. I pray for you and many other folks daily, hang in there. God Is Good All The Time.
Title: Re: My cancer journey
Post by: Ed_K on January 21, 2017, 05:28:14 pm
 We went to Hanover on Wed. for another meeting with the specialist, one of my questions was about the needle not sealing and the chemo getting out of the vein, he looked at my arm and said that the skin around the injection site would be hard but it wouldn't eat the skin away, so that made me feel better. There were two other understudies fellows that checked me out, going over how the stem cell harvest is done.and The Dr. seems to think that the numbers they go by are as low as they can get them, so they are wanting to get started on the harvest of the cells. Part of this is to do a bunch more test like ekgs, chest x-ray, electrocardiogram, another bone marrow test and maybe another colonoscopy. They also do a dental exam.
 So on Monday I went to the dentist for the check up, they found three teeth that needed fixing. On Friday they got me back in to fix them. A shot of novacaine and fixed two, on the third tooth I came out of the chair, it wasn't a cracked filling but a bad tooth down to the root. After 3 more shots of novacaine he gave up. All the doctor's had a get together and decided I needed it pulled out Can't have any infections during and after the stem cell transplant. Friday it comes out. I'm more nervous with this than getting chemo treatments.
 A lesson here is once you have a cancer diagnosis, don't drop the dentist exams. Eight months of no cleaning can ruin some teeth quick.
 I had more blood test at Hanover on Wed. When the results come back they will decide on more chemo cycles or wait for this infection to go away and start the blood cell harvest. Part of the harvest begins with a four hr chemo session, then I have to give myself a shot every day for a week. I don't know if I can actually give myself a shot. The four hr chemo will kill all the myloma cells and other bad cells floating around in my system, then the shots will bring out good cells from my bone marrow for harvest which will take anywhere from a day to three days. Once they get as many good cells as they can, they will give me a massive dose of chemo that will kill all the cells in my body and then they will put the good cells back in. I will be there for three to four weeks in a germ free environment to make sure everything is growing right.
Title: Re: My cancer journey
Post by: Autocar on January 21, 2017, 07:47:18 pm
Holey cow sounds like a long journey ahead of you. Prayers your way every day. Just keep the smells of the woods and how the cold air of winter lifts you up thinking about the logging day ahead. Stay strong brother !
Title: Re: My cancer journey
Post by: samandothers on January 21, 2017, 08:18:22 pm
Praying for your healing and ability to over come! 
Title: Re: My cancer journey
Post by: gww on January 21, 2017, 08:23:59 pm
Edd
My uncle doesn't have his teeth any more.  He said when he was going through chemo that the mouth sores were just horrible.  It takes a lot of time at the doctors to get through this stuff aparrently.  I am still wishing you the best and hoping that things come at you at a pace you can handle. 
I am hoping your family support group is holding up also.  Good people are faced with hard things and I hope they can keep their chin up and really don't know how to help them do that but am hoping that my good wishes might help in some way.
Good luck
gww
Title: Re: My cancer journey
Post by: thecfarm on January 21, 2017, 10:02:02 pm
Thanks for the report. I am here for you. I will haul out a few trees tomorrow for you. I will be thinking of you.
Title: Re: My cancer journey
Post by: Ed_K on January 23, 2017, 03:09:28 pm
 Thanks to everyone, I just found out that they have changed the process, I'm having a hard time figuring out what they told me.Once Rita gets home and explains it I'll have another post.
 As far as having a support, we have each other. Rita has her sister and nieces. I have a couple of neighbors that I can talk to.And writing of this journey on the Forestry Forum has helped me to understand whats going on in my life.
Title: Re: My cancer journey
Post by: Roxie on January 23, 2017, 04:43:18 pm
I sincerely hope you get to look back on your thread about your journey twenty years from now. 
Title: Re: My cancer journey
Post by: Bruno of NH on January 23, 2017, 07:31:27 pm
Ed sending you the best
It's a lot to take in at one time
Keep up you can beat this
Bruno
Title: Re: My cancer journey
Post by: fishpharmer on January 23, 2017, 07:39:50 pm
Ed, you're in my thoughts and prayersas you go through this tough time. 
Title: Re: My cancer journey
Post by: Ed_K on January 24, 2017, 10:06:28 am
 I truly would like to see 20 yrs from now. All I can do is hope and pray.
Title: Re: My cancer journey
Post by: Stephen Alford on January 25, 2017, 07:36:28 pm
  Hang in there my friend, you already have a lot of the tough miles behind you.  Don't slack off on the vitamin D   :)
Title: Re: My cancer journey
Post by: Ed_K on January 26, 2017, 11:05:32 am
 Stephen, they have me on caltrate 600-D3. The vitamin D3 is 200% of daily needs. It also has 600mg of calcium. I hope this will build up the bones, the long bones in my legs hurt constantly.
 We got news yesterday that both doctors decided that the numbers that they go by are as low as they can get them. So now I start doing all the test they need done. They gave us an appointment for Feb 15 to go back to dartmouth to do the stem cell harvest. It looks like this part and then the second part where they kill off all the cells and then put the harvested cells back in will drag right thru sugaring season. I'd rather miss one season then alot of them. Tomorrow I go to have this infected tooth pulled. That scares me more than having chemo treatments. They keep telling me that I can't work any more, but I have been down to my logging job enough times to get all the good sawlogs cut. I had a friend of Rita's drop most of them,left 6 that I cut  ;D. My trucker came down each time to help skid the logs out and trucked 3 loads to the mill  8).Now I just have the cordwood and pallet log to cut sometime, I hope to get them late spring. I may be sick but I ain't giving up being in the woods  ;) .
Title: Re: My cancer journey
Post by: thechknhwk on January 26, 2017, 10:48:21 pm
 smiley_beertoast here's to a big comeback for you.  I hope for the best for you.
Title: Re: My cancer journey
Post by: Magicman on January 27, 2017, 09:36:30 am
ED, I continue to follow you journey and my prayers are with you for strength and healing grace.
Title: Re: My cancer journey
Post by: barbender on January 27, 2017, 12:48:26 pm
Ed, you've got some real tenacity and I pray that will get you over the hump with this. It's been my experience in my relatively short life that people that have that tenacity are the ones that come out the other side of stuff. The ones that are out there cleaning up their logging job when all conventional wisdom says you should be home in bed, that might be right but that same drive that doesn't make sense at times is what helps you push through difficulties. You have my prayers and my admiration ;)
Title: Re: My cancer journey
Post by: Ed_K on January 28, 2017, 07:52:26 pm
 Well I got the tooth pulled out yesterday,or I should say broken out. They numb you up real good, then go in there with what felt like vice-grips and squeezed the tooth into pieces. They picked all the pieces out then pulled the roots out. Said the roots were the biggest they ever seen. I saw one of them, and it looked like the size of a 10 penny nail head. When the novicane wore off it started to hurt and I bumped up the pain med I take that takes care of all the cancer pain. It barely worked, I also put ice on the side of my cheek to help the swelling. The worst is the infection makes my mouth taste and smell awful. I had to wait 24 hrs to use salt water to rinse it away.
 Thanks to all for the good wishes and prayers.
Title: Re: My cancer journey
Post by: gww on January 28, 2017, 08:26:50 pm
Edd
I was going to not have dental insurance when I retired and so over a two year period (cause of limits that the insurance would pay) I had my uppers pulled and then all my lowers the next year.  I remember going to the pharmacy with gauze in my mouth and them asking me a question and when they saw the effort I was making to answer, they said they understood and didn't ask me anything else. 

I feel for you man. 
Good luck
gww
Title: Re: My cancer journey
Post by: barbender on January 28, 2017, 08:59:02 pm
Ed, I had a tooth pulled once, same thing- it was a tooth I had root canal done on, and it had cracked. It got really infected, and the dentist said the novicaine would have a minimal effect because of the PH levels the infection causes in the vicinity. She wasn't kidding! That's the worst pain I've ever experienced, it took them well over an hour to get it out. Really big, bulging roots. They had to cut it in two, this little gal of a dentist was really having to work at this thing, she was sweating and everything! As an aside, I have a theory that women who have experienced childbirth get extreme amounts of satisfaction watching a big baby of a man hurting, I'm convinced the dentist and her assistant were giving each other mental high fives ;D They still mention that stupid tooth when I get to the dentist, and that had to be 8 years ago.
Title: Re: My cancer journey
Post by: Ed_K on January 29, 2017, 09:52:21 am
 Where's the high five emicon, I really believe that  :( .
Title: Re: My cancer journey
Post by: kensfarm on February 09, 2017, 12:07:15 am
Ed you guys are making my mouth hurt.. had 2 teeth that needed filling or pulling.. after half a dozen shots.. the last being a nerve block shot.  She said.. your going to have to see an oral surgeon.  Cost me $90.. my mouth was numb for the rest of the day.  I found that a lot of the pain is caused by gum swelling/inflammation.. they have a prescription oral rinse that reduces the gum swelling pretty fast.. it really helps.  You should just be able to call the dentist and get it prescribed.  God bless.. hope you get some pain relief.
Title: Re: My cancer journey
Post by: Ed_K on February 09, 2017, 08:20:33 am
 I've been using a salt water rinse. But what ever is used,be careful not to rinse to hard. If you wash the clot out you end up with a dry socket which is what gives the real pain. I had to go back to the oral surgeon,and he put a piece of cord in the hole that is impregnated with clove extract. It stopped the pain in minutes,they leave it in for a few days to let the skin build a bridge across the opening.Friday will be 3 weeks and it just starting to heal up now.
Title: Re: My cancer journey
Post by: Ed_K on February 09, 2017, 08:42:38 am
 I went in to the hospital yesterday for my bone marrow biopsy test. They numb the skin on the hip then use a probe to go into the hip and take out a piece of the bone. That hurt almost as much as the tooth extraction. The rest of the tests that I needed done, came out ok. One test I got to see my heart beating,that was pretty kool, the lady doing it said my heart was in really good shape  :) .One other test was for my lungs and breathing. They said I was equal to a 30 yr old. Has to be from being out in the woods all my life  ;D . So now we wait for word to start the blood cell extraction.
Title: Re: My cancer journey
Post by: Autocar on February 10, 2017, 06:44:23 pm
Sounds like your going the right direction Ed, keeping you in our prayers
Title: Re: My cancer journey
Post by: Ed_K on February 17, 2017, 09:57:35 am
 On Feb. 15 we went up to Dartmouth to visit with the Dr. and three specialist's who explained where I'm at now. The myloma cells are down as low as they feel they can get them. So we are starting with the cell collection process. I had my heart and lungs checked out then Thur.the 23 I have to have a colonoscopy then Fri. the 24 we go start the cell harvest. It starts with a dose of chemo (stronger than what I've been doing) it is 6hr procedure where they give 2hrs of saline then 2hrs of the chemo and 2 more hrs of the saline . On Sat. I will start with 2 shots a day (I do myself) for 10 days. The injection of chemo with kill off more of the myloma cells and the injections will build more new cells, enough to over fill the bone marrow and flow out into my blood stream. Thats when I go back to Dartmouth and they take out the extra good cells,and freeze them.They said they need 5 million. When I get enough strength they will do the final chemo that kills all the cells left wait 3 days and inject the harvested cells back in and wait for them to replenish the cells in the bone marrow. During this last part I'll be in kind of an intensive care unit for 3 to 4 weeks depending how long it takes to get the marrow built up. March is going to be a long month.
Title: Re: My cancer journey
Post by: Jeff on February 17, 2017, 10:20:39 am
We will all be there with you.
Title: Re: My cancer journey
Post by: Weekend_Sawyer on February 17, 2017, 10:36:35 am

 Ed, I'm sending good thoughts your way.

Lets plan on meeting up at the Forestry Forum pig roast in 20 years.

Jon
Title: Re: My cancer journey
Post by: Roxie on February 17, 2017, 11:35:44 am
I am wishing you strength.  It sure is a frightening and uncertain road ahead of you, but just think how incredible it will be to come out the other side.  This time next year, may it all be a bad memory.   smiley_heart

Title: Re: My cancer journey
Post by: Bruno of NH on February 17, 2017, 02:44:14 pm
Ed is it Dartmouth Medical Center in Hanover NH ?
Title: Re: My cancer journey
Post by: Ed_K on February 17, 2017, 03:44:41 pm
 Thanks, Jeff, Weekend_Sawyer and Roxie. Bruno of NH, yes that is where I've been going. I feel safe there as I had back surgery there 22 yrs ago after all the doctors down here where I live said I'd never walk again. Day after I crawled into Dartmouth I could walk, so I believe they work miracles there.
Title: Re: My cancer journey
Post by: gww on February 17, 2017, 07:24:01 pm
Hey Edd
I will be happy for any miracle that they hand out to you.
Cheers
gww
Title: Re: My cancer journey
Post by: thecfarm on February 18, 2017, 05:42:43 am
I hope all goes well for you.
Title: Re: My cancer journey
Post by: samandothers on February 18, 2017, 07:51:00 am
Prayers and thoughts for and to you and your family!
Title: Re: My cancer journey
Post by: Magicman on February 19, 2017, 09:58:31 pm
My continued prayers are with you Ed. 
Title: Re: My cancer journey
Post by: Ed_K on February 21, 2017, 04:15:01 pm
 Thank you, to all.   Went to the oncology unit where I've been getting treatments for the last 8 months. The doctor explained this next procedure of collecting the cells. Getting the big dose of chemo. Then growing the new cells needed for the transplant. Then spending the time in the care ward at Dartmouth Hitchcock cancer center. It's a long haul but I know it's needed for me to beat this thing. So I signed the consent and said lets get on with it. Still scary tho.
Title: Re: My cancer journey
Post by: Jim_Rogers on February 21, 2017, 05:41:25 pm
Just remember you have lots of FF members praying for you everyday. And we're all right there beside you, in spirit.
Take care and get well soon.

Jim Rogers
Title: Re: My cancer journey
Post by: Ed_K on February 22, 2017, 07:07:31 am
 Hi Jim, I'm glad to have everyone thinking and praying for me. I've been shopping for a tablet to take with me so I can keep up with everyone here on the Forestry Forum. I recently got hooked on the sawing and milling thread. I have the small ez Baker mill that I intend to use to make lumber for small projects. I've been reading there to find ways to make the mill run better, look at everyone's building projects and learn how to sharpen blade with a used dina saw grinder. So I'll be reading what ya'all are doing while I'm rebuilding cells to come home. And use the shop I've been working on, to keep busy if I can't go logging any more. Thanks to all on the Forestry Forum.
Title: Re: My cancer journey
Post by: petefrom bearswamp on February 22, 2017, 05:59:04 pm
Ed, Thoughts and prayers here for a SUCCESSFUL journey
Title: Re: My cancer journey
Post by: Bruno of NH on February 22, 2017, 06:47:45 pm
Good luck Ed
They saved my life there on Christmas Day
You are in good hands :)
I live not far from DHMC .
Bruno
Title: Re: My cancer journey
Post by: Peter Drouin on February 22, 2017, 07:33:43 pm
Every day prayers for you and Bruno.
So Ed do you think logging is easier than chemo?
Title: Re: My cancer journey
Post by: POSTONLT40HD on February 22, 2017, 09:17:42 pm
Praying for you Ed. You're a tough old bird. I admire you for sharing your journey and your bravery.
Title: Re: My cancer journey
Post by: sawguy21 on February 22, 2017, 11:11:15 pm
Hang in there buddy. My wife is dealing with the dreaded C and there is no easy answer. It is not what we signed up for but this is the hand we have been dealt so we play it the best we can.
Title: Re: My cancer journey
Post by: Autocar on February 24, 2017, 03:14:01 pm
God is good all the time, prayers every day your way Ed also Sawguy21 will add your wife on my list of prayers !
Title: Re: My cancer journey
Post by: newoodguy78 on February 24, 2017, 05:03:12 pm
Stay strong and I send well wishes and prayers your way.
For what it's worth I have the IPad mini and have really grown to like it, it's also very easy to learn and use.
Title: Re: My cancer journey
Post by: Ed_K on February 25, 2017, 07:18:24 pm
 Thanks everyone, sawguy21, I have prayers for your wife and you also. We will fight this 8).
  Peter Drouin, Yes I think logging is easier than chemo. With logging you get tired at the end of the day (which is alway a great day)when you get up next morning your raring to go. With chemo your tried every morning and it's a chore to get out of bed, but you do.
Title: Re: My cancer journey
Post by: Peter Drouin on February 26, 2017, 06:20:35 pm
I thought so Ed-K, Best of luck to ya.
Are you watching the race at Daytona 500?
Title: Re: My cancer journey
Post by: Ed_K on February 28, 2017, 06:32:14 pm
Peter, I have to admit I tried to watch the 500. I relied on my son Chris to explain what they were doing with the rules. With him gone it was hard. I had a big shot of chemo on Fri. Sat there for 6 hours. This killed enough cells to make my bone marrow start building new ones. Now Rita is giving me shots for 10 days to push the cells out into my blood so next Mon.they can take them out. On the 22nd I go back to Dartmouth where they will do the big chemo then put the saved cells back. Then it's a wait and see how good it worked.
I'm learning how to use this tablet so I can keep up with what y'all are up to.
Title: Re: My cancer journey
Post by: Peter Drouin on March 01, 2017, 05:57:22 am
Lets hope it goes well.
How fast have you driving a car or truck?
On a track at 200 miles an hour must be a blast.
I remember back in the 70s going down I93 at 100 passing beers between 2 cars, stupid I know. But what fun. I had a 1972 duster 340 with a 4 speed, Pass anything but a gas station. ;D
Title: Re: My cancer journey
Post by: thecfarm on March 01, 2017, 06:04:20 am
Hi Ed,I sure do hope things go well for you.
If a big fan of racing,or really watching TV,we just bought a 70 inch TV. :o   That brings EVERYTHING to life size. I don't watch much TV,but do watch movies. WOW!!! Now we need to invest in Bluray and a surround sound and will really have it made. This TV is just about as good as having a 3 point winch on the back of a tractor.  :D
Title: Re: My cancer journey
Post by: Roxie on March 01, 2017, 08:36:33 am
Ed, if Cowboy Bob can learn to use an iphone, you can learn that tablet.   :D  I have confidence in you. 
Title: Re: My cancer journey
Post by: Ed_K on March 01, 2017, 12:19:19 pm
 I had an awful hard time coming to grips with the desk top. Putters are not my strong suit. But I think I'd go nuts if I can't check in on the FF.
 As far as going fast 72 ford mavric 302 4 speed at 135 racing a heavy chevy out of Portsmouth, N.H. Ya I got caught  :D . $300 and 6 months loss of lic. Can't do that now a days  ;D .
Title: Re: My cancer journey
Post by: Peter Drouin on March 01, 2017, 12:35:25 pm
 8) :D :D :D That's fast.
Title: Re: My cancer journey
Post by: sawguy21 on March 01, 2017, 03:07:36 pm
 :D :D I was talking to a retired RCMP officer who had served in the local detachment. He asked me if I was one of those he used to run in on a Saturday night. I said no but I gave you plenty of opportunity. I liked speed too. ;)
Title: Re: My cancer journey
Post by: Ed_K on March 05, 2017, 10:16:12 am
 Friday the 24th, we went to the oncology dept. here at home and got the chemo injection to start the cell harvest. Since then Rita has been giving me shots to make the good cells come out of the bone marrow.
 Tomorrow we go the Dartmouth to start the harvest. They say if they can get 5 million cells first day it would be great, but it could take 2, or 3 days if they have a hard time with getting a place in each arm to do it. If it don't work they will put a catheter in my shoulder to get blood.
 With this chemo injection, it's supposed to tell the bone marrow that something is attacking my system and make more cells to fight it.
 Well they only mentioned that I would have pain in my back, joints and large bones. Wow  :o :( this pain is worse than when I ruptured my L4-L5 disk. We called them back yesterday morning to hear, it only last 24 hrs.  >:( . It started Fri.630pm and has finally slowed this morning.
 I still have pain but I can at least sit and make it go away. Pain meds dulled it some but I don't know how it'll be riding up to Lebanon, N. H. to stay over night tonight. Thought it better than trying to drive up at 5 am to be there for 7:30 am. there's a half way house we can stay in.
Title: Re: My cancer journey
Post by: Stephen Alford on March 06, 2017, 08:17:28 am
   Ed there are folks reading this thread of your journey/struggle that will have to travel this same road, they just don't know it yet. How you have delt with it is nothing short of inspirational.  Good luck my friend.. GIVER   :)
Title: Re: My cancer journey
Post by: gww on March 06, 2017, 09:07:36 am
stephen......
Quote
Ed there are folks reading this thread of your journey/struggle that will have to travel this same road, they just don't know it yet. How you have delt with it is nothing short of inspirational.  Good luck my friend.. GIVER   
x2
gww
Title: Re: My cancer journey
Post by: Bruno of NH on March 06, 2017, 10:30:34 am
Good luck Ed
Will be thinking of you
Bruno
Title: Re: My cancer journey
Post by: Ed_K on March 08, 2017, 08:30:04 am
 We made it up OK. Stayed at a place called Maynard house. It works with the hospital for people who need a place to stay while loved one's are hospitalized or waiting for admission to the hospital. They charge $25.00 per person per night.
 We got admitted at 7:30 am  and by 9 had me all hooked up to the machine. They are very good with getting the needles in. The machine is like a clarifyer,it spins the blood and separate the cells good from bad. It also takes some platelets out too.
 It needs 5 million cells to save for implant. They said it would take one to three day's to complete this. Rita Say's I'm fertilizer in the field ☺. They had enough cells in three hour's to freeze.So we were on our  way home by 3.
 The chemotherapy iv plus the shots for ten days really  got to me ,  as I said in my last post, there was a lot of pain involved. The pain  was due to cells being pushed out of the bone marrow. I need to stress this as it is a good pain for once, it tells you it's working. All tho you think your having a heart attack. Your lower back and into your chest will scare you crazy. I found that I could sit in the recliner just so the pain  would subside some and you can sleep that way.
 We have another meeting next Thursday for more explanations and sign a consent form for the transplant. Then go back on the 22nd to do it. This takes up to four weeks. The first two weeks are critical, as I won't have any immune  cells and it is real easy to get sick. So that's it for now.
 Thanks to everyone for keeping up with my story.
Title: Re: My cancer journey
Post by: Ron Scott on March 08, 2017, 03:16:48 pm
A great story for sure! Great endurance on your part.
Title: Re: My cancer journey
Post by: WDH on March 08, 2017, 03:39:05 pm
Stay put and stay well.
Title: Re: My cancer journey
Post by: thecfarm on March 08, 2017, 06:18:12 pm
You keep posting and I'll keep reading.
Title: Re: My cancer journey
Post by: barbender on March 08, 2017, 10:36:53 pm
Hang in there Ed, you're an inspiration! Praying for you!
Title: Re: My cancer journey
Post by: Magicman on March 09, 2017, 01:24:52 pm
And Thank You Ed for keeping us in your loop.  Mt prayers will continue for your full and complete recovery.
Title: Re: My cancer journey
Post by: Ed_K on March 17, 2017, 08:01:42 pm
 Yesterday we went back up at noon and spent the afternoon going over what they will be doing. Next Wednesday we start the day by putting in a catheter in my right side just below my neck, they will use this to put in the saline, large dose of chemo, blood transfusions and stem cells.
 Two day's after the chemo they will put my stem cell's back in. Then we wait for the cell's to start growing.
 They said that usually they send the patient home in 14 day's. 100 day's at home for recuperating. The first 4 week's I have to go back for checkups. The first week home I'll be the weakest. Then better each week afterwards.
 This whole thing is unbelievable. I went to this hospital 22 year's ago, I couldn't walk from a blown disk, I got from tipping over backwards on a four wheeler dragging a log home for cordwood. They had  me up and walking two day's later, a miracle, I believe. Now I'm there again looking for another.
 Oh, you do lose your hair 😂.
Title: Re: My cancer journey
Post by: gww on March 17, 2017, 08:56:30 pm
Hey ed
Hair is over rated anyway.  Wishing you the best.
gww
Title: Re: My cancer journey
Post by: Peter Drouin on March 18, 2017, 06:13:28 am
 smiley_thumbsup
Title: Re: My cancer journey
Post by: thecfarm on March 18, 2017, 06:26:04 am
Spend time thinking about the things you will do when you get up and going again.
Title: Re: My cancer journey
Post by: plantman on March 18, 2017, 08:08:50 am
I've heard remarkable things about immunotherapy. Immunotherapy is essentially stimulating your own immune system to fight the cancer so it's not going to make you feel worse. Sometimes doctors simply prescribe what they have to offer and don't bring up other therapies that are offered at hospitals outside of the area. President Jimmy Carter received immunotherapy and is doing well.
Title: Re: My cancer journey
Post by: Bruno of NH on March 19, 2017, 05:02:22 pm
You are tough
You will kick this
Title: Re: My cancer journey
Post by: YellowHammer on March 19, 2017, 07:01:35 pm
Keep the faith, we are praying for you. 
Title: Re: My cancer journey
Post by: samandothers on March 20, 2017, 09:14:41 pm
Amen!
Title: Re: My cancer journey
Post by: red on March 22, 2017, 06:29:38 am
Just another day . Thoughts and Prayers sent your way .
Title: Re: My cancer journey
Post by: Roxie on March 22, 2017, 06:36:45 pm
Today you get your catheter.   Thinking of you. 
Title: Re: My cancer journey
Post by: Magicman on March 23, 2017, 10:05:28 pm
Ed, I know that you have begun the critical portion of your treatment and these next two weeks will be a vitally important step in your journey toward regaining your health.  My prayers will continue for healing grace for you.
Title: Re: My cancer journey
Post by: Autocar on March 24, 2017, 04:44:10 pm
Stay strong Ed sounds like your heading in the right direction, prayers your way my friend !
Title: Re: My cancer journey
Post by: plantman on March 25, 2017, 02:32:24 pm
Hey Ed , while looking around the internet for methods to help my cousin with Lyme disease I came across this info on immune enhancing mushrooms found in northern forests . Apparently they grow on yellow birch in moist soils. I don't claim to have any experience with this but it might be something to look into.
https://www.youtube.com/watch?v=0Q2dGq6tISc
https://oriveda.wordpress.com/what-you-should-know-before-buying-mushroom-supplements/
https://www.youtube.com/watch?v=kJSHJ6eKHLg
Title: Re: My cancer journey
Post by: red on April 07, 2017, 05:36:43 pm
Has anyone heard from Ed ?
Title: Re: My cancer journey
Post by: fishpharmer on April 07, 2017, 10:50:37 pm
I'm praying for your return to health Ed!
Title: Re: My cancer journey
Post by: Brucer on April 08, 2017, 09:33:16 pm
This bone marrow transplant business is pretty debilitating. Ed will be in very rough shape for another 2 to 4 weeks -- don't expect him to be in contact for a while.

Title: Re: My cancer journey
Post by: petefrom bearswamp on April 09, 2017, 07:52:01 am
Hope Ed comes thru treatment OK
Prayers from here
Title: Re: My cancer journey
Post by: WDH on April 09, 2017, 10:58:42 am
Thinking about you Ed.  Hang in there.
Title: Re: My cancer journey
Post by: Ed_K on April 09, 2017, 04:00:30 pm
 Ye ha, I made it thru to the other side. Like  brucer and magic man said it is no walk in the park.
 On the 22nd  they gave me the chemo that literally kills every cell in your body. On the 24th they put my cells that they harvested a while back back in. This day is my new birthday. I was doing good  till I got two days of bad drug reactions then a virus called RSV ,and a hospital acquired pneumonia . They treated them with an antiviral and antibiotics.
 So now I'm home and building up my strength. And actually watching a NASCAR race for the first time in weeks.
 Thanks to everyone for helping me thru this. Your words and prayers have really helped.
Title: Re: My cancer journey
Post by: barbender on April 09, 2017, 04:24:02 pm
Ed, thank you so much for keeping us up to date! Keep fighting, friend!
Title: Re: My cancer journey
Post by: sawguy21 on April 09, 2017, 04:50:57 pm
Good to see you back brother. 8)
Title: Re: My cancer journey
Post by: Roxie on April 09, 2017, 05:29:56 pm
HEY!!  There you are!!  Welcome, welcome, welcome back!   8)
Title: Re: My cancer journey
Post by: YellowHammer on April 09, 2017, 05:32:53 pm
HAPPY EASTER! 
Wonderful news!
Title: Re: My cancer journey
Post by: Magicman on April 09, 2017, 05:38:17 pm
Welcome Home Ed, and Thank You for the update.  My prayers will continue for Healing Grace.
Title: Re: My cancer journey
Post by: samandothers on April 09, 2017, 06:54:27 pm
Good to hear from you!  Prayers continued!
Title: Re: My cancer journey
Post by: thecfarm on April 09, 2017, 08:23:05 pm
I missed the first stage of the race. I had to put a dishwasher in and than a ride to see the canadian geese,only saw 50. It was a good day. I hope you will have some of them too.
Title: Re: My cancer journey
Post by: Ron Scott on April 09, 2017, 08:36:30 pm
What a journey Ed, great stamina and progress.
Title: Re: My cancer journey
Post by: red on April 10, 2017, 07:33:19 am
Just a few bumps in the road . Very glad to hear from you.
Title: Re: My cancer journey
Post by: Stephen Alford on April 10, 2017, 08:13:12 am
   That is wonderful news Ed , home looks go on ya...  :)
Title: Re: My cancer journey
Post by: Jeff on April 10, 2017, 01:04:11 pm
Ed, I think what you don't realize that you are here as much for us as we are for you, probably more so. Your strength and courage are things that most of us can only hope to have if a time comes where it is called upon. You sir are our inspiration. :)
Title: Re: My cancer journey
Post by: newoodguy78 on April 10, 2017, 01:26:14 pm
I don't think it can be said much better than the big guy just put it. Thanks for the update you have been and will remain in my thoughts. You are definitely an inspiration. Best wishes to you and your family sent your way. Stay strong.

Did you end up getting yourself set up with a tablet?
Title: Re: My cancer journey
Post by: JJ on April 10, 2017, 09:27:29 pm
Hi Ed,
To put it frankly, I have been avoiding this thread (from title) until now, and once I started to read I could not stop until I read all 14 pages of posts.
My experience has been quite different with my family.  I have no cancer history in my family, but on my mom's side everybody died quite sudden from heart disease, usually from sudden massive heart failure.
You however have a fighting chance, where my family, and likely me will die of the silent killer.
Given any choice at all, I would prefer to have a chance to fight against the dark; soldier on,  beat this cancer and live!

Most of all, love your family and the support they give.  I would have given anything to have kept my 4 uncles around for additional months or years.  Now my mum (the youngest now 67) is only one on her side still alive, and I worry a lot as she is now alone since her husband has also die from enlarged heart last year.

Never give up!

      JJ
Title: Re: My cancer journey
Post by: Brucer on April 13, 2017, 01:07:24 am
Welcome back, Ed.
Title: Re: My cancer journey
Post by: Ed_K on April 13, 2017, 12:58:55 pm
 JJ, you can guard against heart problems. Just find questions you need answered and don't let the doctors walk away till your completely satisfied with their answers. If I had looked for problems as to why my hip hurt so much I could have asked for pertinent blood test that would have picked up on the problems.It may not have stopped the cancer but it would have gave me more warning to fight it.

 Yes I did get a tablet but fat fingers make it hard to write on it. I've washed my hands so much it's hard to hold onto it.Other than that I like it.
Title: Re: My cancer journey
Post by: thechknhwk on April 14, 2017, 03:14:09 pm
What blood test is that Ed?  Hope you are healing well.
Title: Re: My cancer journey
Post by: Bruno of NH on April 14, 2017, 09:17:52 pm
Thinking of you Ed
Glad your at home
Title: Re: My cancer journey
Post by: Ed_K on April 21, 2017, 10:37:58 am
 thechknhwk, If they had run blood test for White blood cells it would have come to light earlier. Also red blood cell test will find problems.

 I'm home, but still space in and out a lot so I don't return comments as quick as I should.
Title: Re: My cancer journey
Post by: Roxie on April 21, 2017, 01:35:11 pm
That's okay with us, Ed.   :)
Title: Re: My cancer journey
Post by: gww on April 21, 2017, 03:02:45 pm
Quote from roxie
Quote

That's okay with us, Ed.   




x2
gww
Title: Re: My cancer journey
Post by: newoodguy78 on April 21, 2017, 09:42:46 pm
X3 you have to take care of yourself first
Title: Re: My cancer journey
Post by: trapper on April 21, 2017, 10:55:29 pm
dont say much but have been following your journey
Title: Re: My cancer journey
Post by: Ed_K on April 22, 2017, 10:41:24 am
Thanks everyone. I really like the Forestry Forum and need to follow where I can. If I answer here then read forestry and logging I'm lucky just to make it thru, I try checking out sawing and milling an general I'm pretty much done. Sawing and milling is impossible to keep up with  ;D .
Title: Re: My cancer journey
Post by: newoodguy78 on April 23, 2017, 09:27:09 pm
I'll second the thought that sawmill and milling is impossible to keep up with...that's one happening place for sure  :D
Title: Re: My cancer journey
Post by: thecfarm on April 24, 2017, 07:52:06 am
I check this thread to see how things are going with you.
Title: Re: My cancer journey
Post by: Ed_K on April 24, 2017, 08:56:18 am
 Thanks thecfarm.
Title: Re: My cancer journey
Post by: Ed_K on May 01, 2017, 06:55:44 pm
 I've had problems this last week. If I take a prescribed higher dose of pain meds, I can't stay awake. If I take a lower dose I hurt so bad I can't motivate. It's really bugging me,I can sit here and fall right to sleep in mid sentence,or hurt so much I can't sit still enough to read what your all up to. It took me 10 mins. just to write this.
 I'm still having problems with eating too. If I don't take motion sick pills I can't eat without loosing it. I'm hoping the doctors at Hanover have answer's. We thought we had one more app. on wed. but now I don't know they didn't call back today.
Title: Re: My cancer journey
Post by: barbender on May 01, 2017, 07:58:06 pm
Still praying for you, Ed- for pain relief right now and for you to beat this altogether!
Title: Re: My cancer journey
Post by: thecfarm on May 01, 2017, 09:17:11 pm
Got to be a happy medium somewheres. Good luck finding it.  :)
Title: Re: My cancer journey
Post by: Magicman on May 01, 2017, 10:03:28 pm
My prayers continue to be for your Healing Grace Ed. 
Title: Re: My cancer journey
Post by: sawguy21 on May 01, 2017, 11:19:33 pm
Hang in there Ed, the beast hasn't won the war.
Title: Re: My cancer journey
Post by: thechknhwk on May 02, 2017, 08:06:09 pm
Considered any cannabis?  May help with pain and appetite.  Hope you feel better.
Title: Re: My cancer journey
Post by: Ed_K on May 03, 2017, 09:37:08 am
 We've talked about it, but I would need the doctor to talk to us about it first.
Title: Re: My cancer journey
Post by: samandothers on May 03, 2017, 05:55:00 pm
Thoughts and prayers for you.
Title: Re: My cancer journey
Post by: petefrom bearswamp on May 03, 2017, 06:20:38 pm
Same from here
Title: Re: My cancer journey
Post by: dgdrls on May 07, 2017, 09:18:31 pm
Hold fast Ed,   you're an inspiration,

very best to you

Dan
Title: Re: My cancer journey
Post by: Ed_K on May 08, 2017, 10:04:18 am
 Yesterday I felt good enough to get the snow plow off the tractor move the medium wood splitter so I can get a load of wood in and start working up next winter's wood.Today I woke to feeling a lot better. I just hope it stays with me.
Title: Re: My cancer journey
Post by: barbender on May 08, 2017, 10:37:32 am
Praise God! I'm really happy to hear that, Ed! Don't over do it now.
Title: Re: My cancer journey
Post by: red on May 08, 2017, 03:27:34 pm
What makes you think your not getting any more snow ?  Just kidding ,  it all sounds great .
Title: Re: My cancer journey
Post by: samandothers on May 08, 2017, 07:04:13 pm
Hope you are on a good roll!
Title: Re: My cancer journey
Post by: thecfarm on May 08, 2017, 09:14:41 pm
There!!! That's more like it. I bet that felt good.  ;D
Title: Re: My cancer journey
Post by: Ed_K on May 09, 2017, 07:38:04 am
 Back in the late 70s early 80s we got enough snow to pollinate the blue berries, best crops we had them yrs  ;) .
Title: Re: My cancer journey
Post by: Autocar on May 28, 2017, 07:21:09 pm
Sounding good Ed prayers your way.
Title: Re: My cancer journey
Post by: Ed_K on June 04, 2017, 09:44:02 am
 Just an update, they changed my daily pain meds so that I take one kind during the day and the regular med at night. The day time med doesn't make me drowsy so I can function and get some work done. I figure I need to work to build my muscles back up. Every day seems to help me get better. I have learned to listen to the body, if I overdue it the next day is spent recuperating. Which is not fun. It's still one day at a time.
Title: Re: My cancer journey
Post by: red on June 04, 2017, 10:32:05 am
Sounds Great it's a journey not a race .
Title: Re: My cancer journey
Post by: barbender on June 04, 2017, 01:24:32 pm
Thanks for the update, Ed! Keep doing what you're doing, hang in there.
Title: Re: My cancer journey
Post by: Peter Drouin on June 09, 2017, 10:01:41 pm
 smiley_thumbsup smiley_thumbsup
Title: Re: My cancer journey
Post by: nativewolf on June 09, 2017, 10:26:21 pm
Sounds like progress!  More you can do in the daytime the happier you'll be and that's a large part of the reason for being here I think. 

I'm a 2x (2 different type) cancer survivor.  A good attitude means you are living longer! 
Title: Re: My cancer journey
Post by: thecfarm on June 10, 2017, 05:24:28 am
Keep at it.
Title: Re: My cancer journey
Post by: Ed_K on July 24, 2017, 03:28:51 pm
 Had a talk with my oncology doctor last Thurs. He's telling us the white blood cell count numbers are getting better. I asked when the pains going away and all I get is "it takes a long time" I can't stand that answer. It's now been 4 months since I had the blood cell transplant and I am getting around a lot better,but I lack the energy to work more than a few hours and that is getting to me. I loved my work in the woods and need to get back to it.
 Next visit he'll decide on starting a medication to strengthen my bones. It's supposed to add bone tissue to the holes in the bones from the Myloma eating away at them. And another med that will keep the Myloma in check, they can't cure me of the cancer but can keep it in check.
Title: Re: My cancer journey
Post by: slider on July 24, 2017, 04:25:04 pm
Ed  don't get down to this side of the forum much but i am thinking of you and wish you well.
Title: Re: My cancer journey
Post by: Magicman on July 24, 2017, 05:47:20 pm
Thank you for the update Ed.  My prayers continue for your health and strength.
Title: Re: My cancer journey
Post by: thecfarm on July 24, 2017, 09:12:54 pm
Time,time and more time.  ::)  No answers,but many questions. I am thinking of you through out my day. I will even cut a tree for ya.  ;D
Title: Re: My cancer journey
Post by: Ed_K on July 25, 2017, 10:09:40 am
 Thanks for the well wishes, it does help.
 Cfarm, hope that tree can get on a load and markets are up.
Title: Re: My cancer journey
Post by: Autocar on July 25, 2017, 04:45:15 pm
Sounds good Ed stay strong brother !
Title: Re: My cancer journey
Post by: red on July 26, 2017, 05:45:17 am
Just like we had some real Hot days this summer , and on the Hot days you need to think of the Cold Cold days . So you need to remember some of your tough days and work towards the Good Days in your future.
Title: Re: My cancer journey
Post by: thecfarm on July 26, 2017, 05:48:05 am
That's funny Ed.
I just play with firewood on my land now.
Title: Re: My cancer journey
Post by: Ed_K on July 26, 2017, 09:35:11 am
 That stick of wood will help keep you warm this winter  ;D .
 Red, on those hot days didn't bother much. My arms and legs feel cold when it's hot. It's kind of weird to feel that way  :D .
Title: Re: My cancer journey
Post by: red on July 26, 2017, 09:42:47 am
When I took blood thinners I was always cold. Now I no longer take them and I have to watch being overheated . Maybe you need plans to be a snow bird ?
Title: Re: My cancer journey
Post by: Bruno of NH on July 26, 2017, 07:16:13 pm
Ed thinking of you
I'm on a heavy dose of blood thinners I'm cold even when it's hot.
I don't care for them much
Title: Re: My cancer journey
Post by: Ed_K on August 18, 2017, 02:11:59 pm
 Had another visit with the doctor yesterday. After complaining about hurting so much and being told to quit running chainsaws and logging, he told us that I'm at the plateau stage were the myeloma hasn't gone away but isn't making any new cells. So next week they will start me on a maintenance stage where I will get an IV of a drug that will help stabilize bone loss. And I'll take a pill once a day for 21 days to keep the myeloma in check. After 28 days they will do a blood test,if all is ok they'll increase the dosage start again. After a few of these with blood test they wiil be able to tell which dosage is best and I'll take that pill I guess for as long as I live.
 Rita got some publications from the International Myeloma Foundation that explains the disease. In one ( Concise Review of the disease and treatment Options) it give a better than 80 percent chance of holding this Myeloma in check. I pray it right.
Title: Re: My cancer journey
Post by: red on August 18, 2017, 02:54:14 pm
Sounds good , keep looking forward to the Good Days . Many thoughts and prayers sent your way .
Title: Re: My cancer journey
Post by: Magicman on August 18, 2017, 03:22:29 pm
Ed, my prayers continue for a favorable outcome regarding your cancer.
Title: Re: My cancer journey
Post by: Autocar on August 18, 2017, 07:29:10 pm
Sounds good Ed I am so happy for you ,prayers your way
Title: Re: My cancer journey
Post by: thecfarm on August 18, 2017, 08:50:29 pm
80%!!! I like the sounds of that.  8)
Title: Re: My cancer journey
Post by: barbender on August 18, 2017, 09:32:37 pm
Me too! Hang in there, Ed!
Title: Re: My cancer journey
Post by: samandothers on August 28, 2017, 09:51:21 pm
Prayers continue for your strength and improvement!
Title: Re: My cancer journey
Post by: Ed_K on August 30, 2017, 01:30:34 pm
Yesterday afternoon I got the call to start the 21 day meds. They were going to postpone it as my blood platelets were to low, the doctor looked at the blood tests and decided it will be ok to start  8) . The IV drug that I will take every 3 months will start on the 5th of Sept. this builds up the bone and hopefully fills in the holes where the myeloma damaged them. So here I go  ;) .
Title: Re: My cancer journey
Post by: gww on August 30, 2017, 02:15:45 pm
Ed
 8)
If you are jumping for joy, then so am I.
Cheers
gww
Title: Re: My cancer journey
Post by: Magicman on August 30, 2017, 02:59:20 pm
Thank You Ed for the update.  My prayers will continue for your successful treatment and recovery.
Title: Re: My cancer journey
Post by: Autocar on August 30, 2017, 06:57:21 pm
Prayers your way Ed !
Title: Re: My cancer journey
Post by: barbender on August 30, 2017, 09:18:15 pm
Thanks for the update, Ed!
Title: Re: My cancer journey
Post by: Ed_K on September 24, 2017, 12:41:50 pm
 Last Wednesday's Doctor appointment informed us that the bone pain is something I wiil have the rest of my life. And that the best thing to deal with it is to use the pain meds. I really believed that I would go into a complete remission and the bone pain would go away. Guess we didn't ask the right question's. We met with a Nurse practitioner who we will meet with every other time we go in for a council. In the meeting I was given a pamphlet from the Leukemia & lymphoma Society (I put the name on page one here also in case someone needs the info.) that really explains the phases of my disease. And what questions to ask a doctor. (I wish we were given this information in the beginning).
 So now I'm on maintenance drugs one to strengthen my bones (myeloma dissolves the calcium in the bones). And a light chemo drug that will try to eliminate the last of the myeloma cells.
Title: Re: My cancer journey
Post by: Stephen Alford on September 24, 2017, 01:49:12 pm
Sure has been a rugged 14 month journey but you are a long way from were you started... good on ya my friend   :)
Title: Re: My cancer journey
Post by: sawguy21 on September 24, 2017, 01:55:14 pm
I am really glad to hear from you Ed, it has been a bumpy road. Keep up the good fight my friend, all the best to you.
Title: Re: My cancer journey
Post by: Magicman on September 24, 2017, 01:56:00 pm
Even a small step is a step ahead.   8)
Title: Re: My cancer journey
Post by: samandothers on September 24, 2017, 02:11:26 pm
Hope through mess and time pain will be manageable. 
Title: Re: My cancer journey
Post by: Bruno of NH on September 25, 2017, 05:12:24 am
Keep up the good fight you will kick it
Title: Re: My cancer journey
Post by: Ed_K on September 25, 2017, 09:21:09 am
 Thanks everyone, they are small steps but I see them going forward  :) .
Title: Re: My cancer journey
Post by: thecfarm on September 25, 2017, 02:19:36 pm
You better be going forward!!!   ;D Questions,questions,questions. At times like that,who knows which ones to ask.
Title: Re: My cancer journey
Post by: Ed_K on October 29, 2017, 02:24:38 pm
 Last Tuesday I started a second 21 day treatment of the light chemo drug. In the last 2 weeks I've really started feeling great. I actually worked on the logging job on days it didn't rain and worked 5-6 hrs a day and didn't wear myself out totally. So I thought if I felt this good maybe I could cut down on the pain meds, NOT, wow the pain came on with a vengeance. won't try that again. 8th of Nov we go to visit with the doctor's that did the cell transplant for a review. Hoping they tell me I'm in remission. Then I only need worry that it could come back.
Title: Re: My cancer journey
Post by: Autocar on October 29, 2017, 02:56:05 pm
Ed I pray for good news when you see him !
Title: Re: My cancer journey
Post by: plantman on October 29, 2017, 05:49:02 pm
A friend of mine is a podiatrist who has a chiropractor friend who had colon cancer. Rather than going for surgery and chemo he went to Germany to a clinic called , Klinik Marinus Am Stein. At this clinic they gave him a hyperthermic treatment which is apparently some sort of sauna designed to raise his body temperature ( like having a fever ) and this is supposed to kill the cancer. He claims total success. They also gave him vitamin infusion treatments.
Title: Re: My cancer journey
Post by: Ed_K on November 07, 2017, 12:11:13 pm
 Maybe I baked it out of me on Sunday. Went to the ER with a 102.6 Doctor on call thinks I have a bacterial infection. Was scared I wouldn't be able to go to Dartmouth Hitchcock tomorrow. But they called back this morning and said I could come.
Title: Re: My cancer journey
Post by: Ed_K on November 09, 2017, 07:20:07 pm
Yesterday we went. We're at where we're at. I still have it,it's not going to be cured but it's not making new cells anymore. So all we can do now is take the maintenance drugs and hope and pray it doesn't start growing again.
 Today we went to my home oncology Doctor for the follow up on the sunday night trip to the ER. They can't find anything that is causing the roller coaster ride with the temps. All test came back negative. Just now I felt a little hot took my temp it's up to 101.3 but the doctor said it just needs to run it's course. Don't worry till it 105   :o :( . they have me on a anti bacterial med for 7 days.
 So that where I'm and all I can ask. I'm going to pray for 20 yrs  ;D  8) .
Title: Re: My cancer journey
Post by: Jeff on November 09, 2017, 07:45:13 pm
So will we Ed. You can count on it.
Title: Re: My cancer journey
Post by: Magicman on November 09, 2017, 08:20:08 pm
My Prayers will continue for you Ed.
Title: Re: My cancer journey
Post by: Chuck White on November 09, 2017, 08:21:56 pm
Thinking about you, Ed!

Keep up on your maintenance meds!
Title: Re: My cancer journey
Post by: thecfarm on November 09, 2017, 08:55:31 pm
Ed,I am here.
Title: Re: My cancer journey
Post by: Autocar on November 10, 2017, 01:40:43 pm
Prayers your way my friend . Twenty years that's what we will pray for.
Title: Re: My cancer journey
Post by: Bruno of NH on November 11, 2017, 09:42:36 pm
I'm thinking about you Ed and you will get prayers for as long as it takes