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Author Topic: My cancer journey  (Read 19380 times)

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Offline Ed_K

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Re: My cancer journey
« Reply #320 on: August 30, 2017, 01:30:34 pm »
Yesterday afternoon I got the call to start the 21 day meds. They were going to postpone it as my blood platelets were to low, the doctor looked at the blood tests and decided it will be ok to start  8) . The IV drug that I will take every 3 months will start on the 5th of Sept. this builds up the bone and hopefully fills in the holes where the myeloma damaged them. So here I go  ;) .
Ed K

Offline gww

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Re: My cancer journey
« Reply #321 on: August 30, 2017, 02:15:45 pm »
Ed
 8)
If you are jumping for joy, then so am I.
Cheers
gww

Offline Magicman

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Re: My cancer journey
« Reply #322 on: August 30, 2017, 02:59:20 pm »
Thank You Ed for the update.  My prayers will continue for your successful treatment and recovery.
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Offline Autocar

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Re: My cancer journey
« Reply #323 on: August 30, 2017, 06:57:21 pm »
Prayers your way Ed !
Bill

Offline barbender

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Re: My cancer journey
« Reply #324 on: August 30, 2017, 09:18:15 pm »
Thanks for the update, Ed!
Too many irons in the fire

Offline Ed_K

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Re: My cancer journey
« Reply #325 on: September 24, 2017, 12:41:50 pm »
 Last Wednesday's Doctor appointment informed us that the bone pain is something I wiil have the rest of my life. And that the best thing to deal with it is to use the pain meds. I really believed that I would go into a complete remission and the bone pain would go away. Guess we didn't ask the right question's. We met with a Nurse practitioner who we will meet with every other time we go in for a council. In the meeting I was given a pamphlet from the Leukemia & lymphoma Society (I put the name on page one here also in case someone needs the info.) that really explains the phases of my disease. And what questions to ask a doctor. (I wish we were given this information in the beginning).
 So now I'm on maintenance drugs one to strengthen my bones (myeloma dissolves the calcium in the bones). And a light chemo drug that will try to eliminate the last of the myeloma cells.
Ed K

Offline Stephen Alford

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Re: My cancer journey
« Reply #326 on: September 24, 2017, 01:49:12 pm »
Sure has been a rugged 14 month journey but you are a long way from were you started... good on ya my friend   :)
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Offline sawguy21

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Re: My cancer journey
« Reply #327 on: September 24, 2017, 01:55:14 pm »
I am really glad to hear from you Ed, it has been a bumpy road. Keep up the good fight my friend, all the best to you.
old age and treachery will always overcome youth and enthusiasm

Offline Magicman

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Re: My cancer journey
« Reply #328 on: September 24, 2017, 01:56:00 pm »
Even a small step is a step ahead.   8)
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Offline samandothers

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Re: My cancer journey
« Reply #329 on: September 24, 2017, 02:11:26 pm »
Hope through mess and time pain will be manageable. 

Online Bruno of NH

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Re: My cancer journey
« Reply #330 on: September 25, 2017, 05:12:24 am »
Keep up the good fight you will kick it
thomas 8013 mill ,Mahindra 3540 cab tractor loader  Dump trailer  and lot of contracting tools

Offline Ed_K

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Re: My cancer journey
« Reply #331 on: September 25, 2017, 09:21:09 am »
 Thanks everyone, they are small steps but I see them going forward  :) .
Ed K

Offline thecfarm

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Re: My cancer journey
« Reply #332 on: September 25, 2017, 02:19:36 pm »
You better be going forward!!!   ;D Questions,questions,questions. At times like that,who knows which ones to ask.
Model 6020-20hp Manual Thomas bandsaw,TC40A 4wd 40 hp New Holland tractor, 450 Norse Winch, Heatmor 400 OWB,YCC 1978-79

Offline Ed_K

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Re: My cancer journey
« Reply #333 on: October 29, 2017, 02:24:38 pm »
 Last Tuesday I started a second 21 day treatment of the light chemo drug. In the last 2 weeks I've really started feeling great. I actually worked on the logging job on days it didn't rain and worked 5-6 hrs a day and didn't wear myself out totally. So I thought if I felt this good maybe I could cut down on the pain meds, NOT, wow the pain came on with a vengeance. won't try that again. 8th of Nov we go to visit with the doctor's that did the cell transplant for a review. Hoping they tell me I'm in remission. Then I only need worry that it could come back.
Ed K

Offline Autocar

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Re: My cancer journey
« Reply #334 on: October 29, 2017, 02:56:05 pm »
Ed I pray for good news when you see him !
Bill

Offline plantman

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Re: My cancer journey
« Reply #335 on: October 29, 2017, 05:49:02 pm »
A friend of mine is a podiatrist who has a chiropractor friend who had colon cancer. Rather than going for surgery and chemo he went to Germany to a clinic called , Klinik Marinus Am Stein. At this clinic they gave him a hyperthermic treatment which is apparently some sort of sauna designed to raise his body temperature ( like having a fever ) and this is supposed to kill the cancer. He claims total success. They also gave him vitamin infusion treatments.

Offline Ed_K

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Re: My cancer journey
« Reply #336 on: November 07, 2017, 12:11:13 pm »
 Maybe I baked it out of me on Sunday. Went to the ER with a 102.6 Doctor on call thinks I have a bacterial infection. Was scared I wouldn't be able to go to Dartmouth Hitchcock tomorrow. But they called back this morning and said I could come.
Ed K

Offline Ed_K

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Re: My cancer journey
« Reply #337 on: November 09, 2017, 07:20:07 pm »
Yesterday we went. We're at where we're at. I still have it,it's not going to be cured but it's not making new cells anymore. So all we can do now is take the maintenance drugs and hope and pray it doesn't start growing again.
 Today we went to my home oncology Doctor for the follow up on the sunday night trip to the ER. They can't find anything that is causing the roller coaster ride with the temps. All test came back negative. Just now I felt a little hot took my temp it's up to 101.3 but the doctor said it just needs to run it's course. Don't worry till it 105   :o :( . they have me on a anti bacterial med for 7 days.
 So that where I'm and all I can ask. I'm going to pray for 20 yrs  ;D  8) .
Ed K

Online Jeff

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Re: My cancer journey
« Reply #338 on: November 09, 2017, 07:45:13 pm »
So will we Ed. You can count on it.
Just call me the midget doctor.
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Offline Magicman

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Re: My cancer journey
« Reply #339 on: November 09, 2017, 08:20:08 pm »
My Prayers will continue for you Ed.
Knothole Sawmill, LLC     '98 Wood-Mizer LT40SuperHydraulic   WM Million BF Club Member   WM Pro Sawyer Network

Never allow your "need" to make money to exceed your "desire" to provide quality service.....The Magicman