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Author Topic: My cancer journey  (Read 19326 times)

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Offline WDH

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Re: My cancer journey
« Reply #120 on: September 13, 2016, 11:04:05 am »
Ed,

My thoughts are with you. 
Woodmizer LT40HDD35, John Deere 2155, Kubota M5640SU, Nyle L53 Dehumidification Kiln, and a passion for all things with leafs, twigs, and bark.  hamsleyhardwood.com

Offline samandothers

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Re: My cancer journey
« Reply #121 on: September 13, 2016, 08:32:20 pm »
Prayers still said for you.  Hang in and pull move on!  Hugs to Rita.

Offline Ed_K

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Re: My cancer journey
« Reply #122 on: September 14, 2016, 09:11:32 am »
 Thanks, to all. I don't like the pain meds but after missing the night time round and the awful pain all night I don't want to do that again. I can only explain how it feels as a burning sensation inside the muscle and cramps all bunched together. We have a meeting with the doctor tomorrow, I hope he explains how I'm doing with this procedure, I feel like they change the dosage or something. #3 session is a lot more of a problem, trying to stay energized. I need to keep moving but I'm so worn down I'd rather sleep.
Ed K

Offline Ed_K

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Re: My cancer journey
« Reply #123 on: September 17, 2016, 09:22:03 am »
 Thursday I had the appointment with the doctor, he's happy with the results of the chemo so far but was concerned with the after effects of the iv medicine. So he's changing up the IV one and the belly shot one. The IV will now be a pill and the shot a different type. I get to have another week off from the meds, to clean out whats still in me. I complained about the burning and numbness and he prescribed a pill to take (3 a day) by pill 4 I was totally out of it. I'd wake up look around and pass right back out, at times I felt like I was having hallucinations, I'd think I was picking up papers in my lap and moving them around and there weren't any papers near me. I quit takin them pill right then, they scared me more than the pain I have. I also was told, I'd finish up the 6 series run I'm on now then I'll go to Mary Hitchcock up in Hanover N.H. were they will take the clean blood cells and grow more with them. Then they will do a high dose of chemo drugs and kill all the bad cell that are left in me, then put the good new cells back in. This procedure really scares me. I have hopes that after they do this I'll be able to get a shot once a month or so and take a pill once a day to manage the cancer and be able to work again  :) .
Ed K

Offline samandothers

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Re: My cancer journey
« Reply #124 on: September 17, 2016, 09:26:57 am »
Good to hear the Doc is good with progress.  Sorry to hear the struggle with pain and results of pain pills.  I can not imagine the apprehension associate with all this.   Praying for you.

Offline Chuck White

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Re: My cancer journey
« Reply #125 on: September 17, 2016, 10:02:42 am »
It's absolutely amazing, the things they can do nowadays!
~Chuck~
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Offline Okrafarmer

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Re: My cancer journey
« Reply #126 on: September 18, 2016, 01:54:52 pm »
Ouch, I'm right there with the frightening halucinations. Last year I was really, really, cotton-picking sick, and I didn't know why. I couldn't even keep water down, and my mind began to shut down as I lay there wallowing in sweat. then I started halucinating. (I wasn't on any meds or drugs of any kind). I would see all kinds of neon-glowing geometric shapes moving around in front of me, and I felt compelled to manipulate them into some sort of order, but I could only assert minimal control over them. All this with extreme nausea, thirst, throat burning with pain, and head pounding. Eventually I got taken to the doctor, who found out it was a bad sinus infection. Who knew. Antibiotics cleared it up.
No matter how conventional wisdom may fly in the face of radical thought, it's still the most popular type.

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Offline thecfarm

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Re: My cancer journey
« Reply #127 on: September 18, 2016, 06:51:59 pm »
Meds can affect us all differently. Keep at it,there must be something for you out there.
I've seen my wife throw 3-4-5 hundred dollars worth of pills away. Paid for by insurance,but still a waste.   ::)  We told the Dr. just give her about 5 and see what happens.
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Offline timberlinetree

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Re: My cancer journey
« Reply #128 on: September 19, 2016, 05:54:28 am »
Glad to hear your making progress. Praying for you.
I've met Vets who have lived but still lost their lives... Thank a Vet

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Offline red

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Re: My cancer journey
« Reply #129 on: September 27, 2016, 09:35:26 am »
I came across a YouTube video this morning . . Chemo this morning , Garth tonight . Enjoying the Dance . In Nov 2014 Garth Brooks stopped a concert after seeing this womans sign in the crowd . In Jan 2015 Garth followed up by saying the woman was Cancer Clean. . Stay strong ED . . Your in our Thoughts and Prayers
We have a lot of good boys and girls in harms way
lets all support them and their familys.

Offline kensfarm

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Re: My cancer journey
« Reply #130 on: September 27, 2016, 09:23:45 pm »
I would def. talk to the doctor about your pain meds.. they can try something at the lower  range like generic percocet.  Enough to help you w/ the pain and be functional.. not knock you out half the day.  Hope you feel better..  Ken

Offline Ed_K

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Re: My cancer journey
« Reply #131 on: September 29, 2016, 10:21:41 am »
 Well I'm back awake, After almost 3 weeks we have found that this med that was supposed to deal with the painfull burning of the muscle tissue and numbness in my arms and legs, had a bad reaction to me which made me sleep all to time. It was all most as bad coming off them than the pain of not have taken them at all. At one point I got where I couldn't stand the smell of food that if I was straight would have loved to eat. then the anxiety got to be too much. On monday Rita took me to the er as I was having what I thought was that I couldn't breath. They did a bunch of test and found nothing so they sent me home. Yesterday we had a meeting with the Nurse Pract. and she said to try the anti nausea, when we got home we found the bottle also say it's for anxiety. What a difference by 3pm I was up, not feeling sick tired or like I couldn't breath. I guess the meds for anxiety are also called happy pills. Anyways I rather take them than something that makes me sleep 24-7.
Ed K

Offline gww

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Re: My cancer journey
« Reply #132 on: September 30, 2016, 08:29:01 am »
ed
happy good.
gww

Offline Carson-saws

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Re: My cancer journey
« Reply #133 on: September 30, 2016, 09:07:22 am »
Ed...from my home to yours...prayers and best wishes to you and those around you.  Obviously you are a very strong person and those that support you love and care deeply for you.  Keep staying strong Sir and "keep that cup full"...
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Offline Ed_K

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Re: My cancer journey
« Reply #134 on: October 08, 2016, 07:26:55 am »
 I've started a second type of drug therapy other than having to have more I.V. injections it's working pretty good less pain and numbness. They are having a rough time getting the iv needles in, took two try's each day and I'm on a thur, fri, treatment. Both arms hurt a little from that but overall pain is down a lot.We talked about a port stile of injection for the iv's but I'm too active I think for this.
 No one can tell us how long this treatment will go on for,but after this it'll go the the stem cell treatments.
Ed K

Offline red

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Re: My cancer journey
« Reply #135 on: October 08, 2016, 09:46:47 am »
Thoughts and Prayers from miles away
We have a lot of good boys and girls in harms way
lets all support them and their familys.

Offline thecfarm

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Re: My cancer journey
« Reply #136 on: October 08, 2016, 08:08:29 pm »
I'm a thinking of ya.  :)
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Offline Ed_K

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Re: My cancer journey
« Reply #137 on: October 15, 2016, 09:22:03 am »
 On wed. we had a meeting with a doctor who's a specialist in Multiple Myeloma at Dartmouth Hitchcock in N.H. We went over my past history, what medicine's I have been on, which ones work and which ones didn't. Now that they have switched me to a new drug it seems to be working better, the first one I think was too strong and I couldn't keep my blood counts up enough to follow thru week to week. They also made me hurt a lot. So there are changes they can do to individualize for each person's system. The doctor will have us come back for another meeting in 6 to 8 weeks to explain what and how the stem cell transplant will be done and give us a tour of the facility. This procedure is where they use my own blood stem cells grow more and freeze them, then when I'm as low as can be in knocking down the bad blood cells and in remission they will use a very powerful chemo, before they go with the transplant and 2 weeks of isolation. After all this I will have to be tested periodically to keep the myeloma in check. Then there will be follow up treatments to keep it in remission. I finished cycle 1 day 4 of the new treatment and feel a little better so here's hoping this new treatment will work better than the first and I can finish cycle 1 have a week off and do cycle 2 and on.
Ed K

Offline Roxie

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Re: My cancer journey
« Reply #138 on: October 15, 2016, 01:11:10 pm »
Sounds encouraging!   :)
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Offline Gary_C

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Re: My cancer journey
« Reply #139 on: October 15, 2016, 01:23:02 pm »
That's good news Ed.
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